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30

Mar

Exactly 4 years ago…
My life turned on a dime and I started on an entire new path which has lead to Complex Regional Pain Syndrome (or CRPS/RSD) - a Chronic Illness causing immense, insufferable, and at times debilitating Chronic Pain.
In fact, CRPS/RSD is ranked at the top of the McGill Pain Scale. It’s above amputation of a digit without anesthetic. It’s above cancer. And it’s above the, perhaps more relatable for most of you out there, childbirth. The pain is all the time. Sometimes it flares and the level reaches a point I know only God understands. It’s me and him against the world. Do any of y’all feel like that? Any others who live with CRPS/RSD? See, because I can’t be angry at him. No way! Whatever his plan was… whatever this pain is… has made me who I am today. Compassionate, empathetic, patient, kind, joyful, hopeful, and incredibly strong, there’s no giving up here! His plan taught me how to love.
And while of course sometimes I get angry that my “5 year plan” didn’t quite work out - oh trust me, I have my hard days! I have moments when a trigger will have me enraged and wrapped up in my loss, blinded by frustration that I’m not “better” (whatever that means!). Caught up in a pointless wrath. They’re just moments! They’re normal - and we know why they happen. To put it incredibly simply… they happen because we’re in too much pain and we feel dependent on others. Because we’re terrified and overwhelmed financially. Because a touch is craved here or there. Because people just don’t get it and you’re bloody sick of hearing that they do. Because you were going to be GREAT, damn it! Because you’re embarassed. Because you’re lonely. Because you just feel all of these and you feel guilty for feeling them because you’re alive and you should be grateful. Or because you should man up. Or because you have a great support system and you feel like an asshole for feeling lonely when people take time out of their day to support you. But that’s just it. You don’t want to be “supported”. You just want to be normal. You just want people to hang out with you because they want to. Not because they feel it’ll life your bloody spirits. Maybe it’s because you feel unwanted. You feel ugly. You’re not. But you feel it. And that’s ok because you’re entitled to feel whatever you want to feel. Or because you’re exhausted and the kids run you to the ground. You feel inadequate as a mother. Does your partner see that yet? Will he? How long until he goes somewhere for a real smile, not a fake exhausted one? Perhaps it’s because you were cheated on. You’re younger and unmarried, but you couldn’t hack it in a relationship anyway. You’re scared about your future. Will anyone want to marry you? Can you even have your own kids? Would you be able to manage them? Maybe you’ve lost your hair. And with this your self-esteem. People make comments. They don’t realise the affect. But you sure do. 
There are SO many reasons we may have a tough day or be affected while on this journey. But in having reasons, we know the reasons. Which means we can work through the reasons.
You know what that means? It means that afterwards we can breathe deeply, have a cup of tea and say… “Whew! Ok, I’m glad I got that out! I honored my feelings.” Be sure to apologise to anyone hurt in the crossfire. Let them know you were frustrated at the situation and not them. Maybe do something nice for them to let them know you truly appreciate them. Then you can do a cheers to positivity and move on. If the issue continues to arise or is incredibly detrimental to your mental health, please seek help. But the bottom line is - we’re pretty blessed to KNOW what our issue is. We can fight each one off one at a time :)
And just for the record, do you think that an illness free, pain free “perfect 5 year plan” existence is issue free. NO WAY! How would psychologists make a living?! In fact, many times, “normal” people (so I’ve heard) have no idea what the issue is. Or even what the issues are. Think back… remember that life? It wasn’t perfect, was it? 

So with a whole lot of reflection what have I learnt? That I wouldn’t change a thing! I am one hell of a lucky duck! Not to mention the wonderful people I’ve met along the way. I thought i knew inspiration before - ha! Thank y’all so much! BIG HUGE MASSIVE LOVE! xx 

Exactly 4 years ago…

My life turned on a dime and I started on an entire new path which has lead to Complex Regional Pain Syndrome (or CRPS/RSD) - a Chronic Illness causing immense, insufferable, and at times debilitating Chronic Pain.

In fact, CRPS/RSD is ranked at the top of the McGill Pain Scale. It’s above amputation of a digit without anesthetic. It’s above cancer. And it’s above the, perhaps more relatable for most of you out there, childbirth. The pain is all the time. Sometimes it flares and the level reaches a point I know only God understands. It’s me and him against the world. Do any of y’all feel like that? Any others who live with CRPS/RSD? See, because I can’t be angry at him. No way! Whatever his plan was… whatever this pain is… has made me who I am today. Compassionate, empathetic, patient, kind, joyful, hopeful, and incredibly strong, there’s no giving up here! His plan taught me how to love.

And while of course sometimes I get angry that my “5 year plan” didn’t quite work out - oh trust me, I have my hard days! I have moments when a trigger will have me enraged and wrapped up in my loss, blinded by frustration that I’m not “better” (whatever that means!). Caught up in a pointless wrath. They’re just moments! They’re normal - and we know why they happen. To put it incredibly simply… they happen because we’re in too much pain and we feel dependent on others. Because we’re terrified and overwhelmed financially. Because a touch is craved here or there. Because people just don’t get it and you’re bloody sick of hearing that they do. Because you were going to be GREAT, damn it! Because you’re embarassed. Because you’re lonely. Because you just feel all of these and you feel guilty for feeling them because you’re alive and you should be grateful. Or because you should man up. Or because you have a great support system and you feel like an asshole for feeling lonely when people take time out of their day to support you. But that’s just it. You don’t want to be “supported”. You just want to be normal. You just want people to hang out with you because they want to. Not because they feel it’ll life your bloody spirits. Maybe it’s because you feel unwanted. You feel ugly. You’re not. But you feel it. And that’s ok because you’re entitled to feel whatever you want to feel. Or because you’re exhausted and the kids run you to the ground. You feel inadequate as a mother. Does your partner see that yet? Will he? How long until he goes somewhere for a real smile, not a fake exhausted one? Perhaps it’s because you were cheated on. You’re younger and unmarried, but you couldn’t hack it in a relationship anyway. You’re scared about your future. Will anyone want to marry you? Can you even have your own kids? Would you be able to manage them? Maybe you’ve lost your hair. And with this your self-esteem. People make comments. They don’t realise the affect. But you sure do. 

There are SO many reasons we may have a tough day or be affected while on this journey. But in having reasons, we know the reasons. Which means we can work through the reasons.

You know what that means? It means that afterwards we can breathe deeply, have a cup of tea and say… “Whew! Ok, I’m glad I got that out! I honored my feelings.” Be sure to apologise to anyone hurt in the crossfire. Let them know you were frustrated at the situation and not them. Maybe do something nice for them to let them know you truly appreciate them. Then you can do a cheers to positivity and move on. If the issue continues to arise or is incredibly detrimental to your mental health, please seek help. But the bottom line is - we’re pretty blessed to KNOW what our issue is. We can fight each one off one at a time :)

And just for the record, do you think that an illness free, pain free “perfect 5 year plan” existence is issue free. NO WAY! How would psychologists make a living?! In fact, many times, “normal” people (so I’ve heard) have no idea what the issue is. Or even what the issues are. Think back… remember that life? It wasn’t perfect, was it? 

So with a whole lot of reflection what have I learnt? That I wouldn’t change a thing! I am one hell of a lucky duck! Not to mention the wonderful people I’ve met along the way. I thought i knew inspiration before - ha! Thank y’all so much! BIG HUGE MASSIVE LOVE! xx 

29

Mar

Looking for love, peace, or a little relief from that ever-nagging pain?Whatever you’re low on, find it through stillness!

The amazing Gabby Bernstein is giving away FREE guided meditations today over at: www.gabbyb.tv/free-meditation — 

The power of mindfulness is a pretty amazing thing! Why not give it a try? For free! xx

Looking for love, peace, or a little relief from that ever-nagging pain?

Whatever you’re low on, find it through stillness!

The amazing Gabby Bernstein is giving away FREE guided meditations today over at: www.gabbyb.tv/free-meditation

The power of mindfulness is a pretty amazing thing! Why not give it a try? For free! xx

28

Mar

Honoured & blessed to be working with the insanely inspiring @tricfox again. I love her! AND YOU’LL LOVE HER MUSIC! Have a listen! xx

Honoured & blessed to be working with the insanely inspiring @tricfox again. I love her! AND YOU’LL LOVE HER MUSIC! Have a listen! xx

25

Mar

Let’s Grow this Community as Big as My Stomach… 
Stitches out! And stomach finally looking a little less bloated (ha!)
Are you - or have you been in - the same boat? As in, do you have a chronic illness that you feel has led to your Gallbladder (or anything else) going haywire?! Get in touch!!! A few of you have written to me already - and while I hate to hear that anyone else is in pain and has also faced surgery, it’s pretty great knowing there’s a community out there to call on, lean on, and depend on in the face of negativity and some serious hurt.
And so…
I’d love to hear from more of you! Let’s grow this community and get both knowledge and positivity to outweigh anything even remotely ugly!
In fact, I’d love to hear from ALL of you! You don’t have to be missing an organ to get in touch with me! Were you just diagnosed and are you confused as to what the hell happens next?! Take a deep breath, I can hold your hand through this. Have you been from doctor to doctor only to hear “This is all in your head?” You have a right to feel the way that you do. But hang in there, we can face this together. Do you have a great doctor but no clue as to which treatment you should start off with? Are you terrified as to what has been suggested? I’ve tried everything! Let’s talk about the pros and cons from a patient’s standpoint so that you can make an informed decision.
Together we can get through this! We can solve this nightmare with togetherness, positivity and a little hope.
So, look to your left and click on “Contact” (or just click on the word to be taken directly to the page!). There are numerous ways to get in touch. Just choose the most convenient one for you. 
I can’t wait to meet and hear what you have to say! xx

Let’s Grow this Community as Big as My Stomach… 

Stitches out! And stomach finally looking a little less bloated (ha!)

Are you - or have you been in - the same boat? As in, do you have a chronic illness that you feel has led to your Gallbladder (or anything else) going haywire?! Get in touch!!! A few of you have written to me already - and while I hate to hear that anyone else is in pain and has also faced surgery, it’s pretty great knowing there’s a community out there to call on, lean on, and depend on in the face of negativity and some serious hurt.

And so…

I’d love to hear from more of you! Let’s grow this community and get both knowledge and positivity to outweigh anything even remotely ugly!

In fact, I’d love to hear from ALL of you! You don’t have to be missing an organ to get in touch with me! Were you just diagnosed and are you confused as to what the hell happens next?! Take a deep breath, I can hold your hand through this. Have you been from doctor to doctor only to hear “This is all in your head?” You have a right to feel the way that you do. But hang in there, we can face this together. Do you have a great doctor but no clue as to which treatment you should start off with? Are you terrified as to what has been suggested? I’ve tried everything! Let’s talk about the pros and cons from a patient’s standpoint so that you can make an informed decision.

Together we can get through this! We can solve this nightmare with togetherness, positivity and a little hope.

So, look to your left and click on “Contact” (or just click on the word to be taken directly to the page!). There are numerous ways to get in touch. Just choose the most convenient one for you. 

I can’t wait to meet and hear what you have to say! xx

24

Feb

Flowers save the day! Flowers always save the day. xx
(at Houston Methodist Hospital)

Flowers save the day! Flowers always save the day. xx

(at Houston Methodist Hospital)

19

Feb

It’s almost Friday! Bust a move… xx

18

Feb

#WinBSCHOOL!!!!

Hi, you!

How’s it going? Are you having a good week?

Have you ever dreamt big? Really big? In fact, what feels like maybe almost sometimes a little bit scary big - but scary in a good way!!! In a way to where you get soft, fluttery butterflies in your tummy - not the steel tipped ones. Well, that’s where I am right now, and I couldn’t be more excited about it! To me, there’s no better feeling than being pushed out of your comfort zone - especially for a good cause! And especially when you feel so proud of the end result!

See, I’m up for a scholarship to the wonderful Marie Forleo’s B-School! The application was a video via YouTube (see that video above? that’s it right there!) and the win would be a way for me to really learn how to skyrocket TheProject3x5 and CRPS/RSD advocacy to the next level.

To be a little more specific, based on my own experience with Chronic Pain and Chronic Illness - through my disease CRPS - I want to bridge the gap & make it easier for other patients from the terrifying starting point of initial diagnosis right through to figuring out treatments and finding support groups. Stress only amplifies illness! So, let’s get rid of that pesky little problem! I’d be sure to instead work TheProject3x5 around mindfulness and meditation. Again, using my own experiences to make sure it’s a realistic endeavor.

I get excited just thinking about it all!

But, like I said… first up, I need to win the scholarship! And here’s where you come in…

How?! Well…

VIEW MY SHORT VIDEO & SPREAD THE WORD!
- The video above explains everything! Watch it on as many devices as you have, because the greater the views I get, the greater a shot I have.
- Then click here, to like the video on YouTube - again the more likes I get, the greater a shot I have!
- It’d mean the world to me if you were to stay on the YouTube page & make a positive comment about the video - this step is super important* because again - you got it! The more positive comments, the greater the chances are that I’ll be awarded the scholarship.

People get thousands of views! So let’s show them what Trinis, TheProject3x5, and The Power of Pain Communities can do here! :)

And did I mention that sharing is caring?

LET EVERYONE YOU KNOW SEE THE VIDEO!!!
Either via Facebook, Tumblr, or Twitter, perhaps even Pinterest! Any other social media platform should be just fine, I’m sure!

Just please make sure that however you decide to share, you also put:

1) the hashtag - #winBSCHOOL on it
2) my name (Danielle Alexis Cosgrove)
4) the original video YouTube link - http://youtu.be/HdMCg7y9Hk0
3) and then this link as well, to promote B-School for Marie :) - http://joinbschool.com/

Thanks a million!!! You’re the best and I hope you have a fantastic week! xx

11

Feb

Laughter is the Best Medicine!

Remember the good old days when Thursday night was for watching “30 Rock" and Liz Lemon was for making you feel that much more secure in your own skin thanks to her never-ending bizarro and crazy-hilarious misgivings? Oh, history!

Whether you were a great fan of the show, caught it once or twice, or (quelle horreur!) have still never seen it; if you suffer from Chronic Pain there’s no denying you’ll be able to relate on some level to Phoebe (Emily Mortimer’s character) and her chorus of “Oww!

I live with the rare, and for the most part invisible, Chronic Pain condition Complex Regional Pain Syndrome (CRPS/RSD) and found myself in a fit of giggles thinking back to the many times strangers have stared at me - someone seemingly in good health - while I almost subconsciously “Oww!” my way through a task.

After all, if you can’t beat it - LAUGH!!! :)

Hope you’re well! Have a wonderful day. - Danielle xx

Ps: I’ve been undergoing pretty intense inpatient ketamine infusions so haven’t been able to write properly for ages. I miss you guys! I’ve been doing my best to update my Twitter feed, Instagram, and Pinterest accounts - so be sure you’re following me there so we can keep in touch. If you’d like more contact information, click the “Contact" tab to the left!

09

Feb

Another outpatient Ketamine Infusion at Hahnemann finished! I feel great and couldn’t be more thankful. (at Hahnemann University Hospital)

Another outpatient Ketamine Infusion at Hahnemann finished! I feel great and couldn’t be more thankful. (at Hahnemann University Hospital)

26

Jan

From last night:
Gambling is ok if it’s for the kids, right?!
AADE Casino Night Benefit for Texas Children’s Hospital. I’m winning and I’m hooked!
I hope you had a wonderful weekend, as well. Be well & be healthy. Lots of love - Danielle xx

From last night:

Gambling is ok if it’s for the kids, right?!

AADE Casino Night Benefit for Texas Children’s Hospital. I’m winning and I’m hooked!

I hope you had a wonderful weekend, as well. Be well & be healthy. Lots of love - Danielle xx