The above inspirational image + my water-baby life as a Trini together = the perfect metaphor for my life as a ‘patient’ (so weird!) actively attempting to live positively despite extreme chronic pain & a diagnosis of the debilitating neurological condition known as Complex Regional Pain Syndrome or Reflex Sympathetic Dystrophy (CRPS/RSD).
I’m not currently at home (I’m up in the States again for the ketamine infusion treatment, remember?), but I sure am longing for it! As today is Sunday, a day in Trinidad & Tobago that usually revolves around the water, often spent lapping up sunshine at the beach or out on a boat… Help me get over my (understandable) homesickness as we go ahead and take my metaphor quite literally…
Ps: All photos were taken post-accident, hence, post-diagnosis. So, I’m sure that many of my fellow CRPS/RSD sufferers will understand that due to the disease’s tortuous symptoms I’d rather stay curled up on a heating pad in bed, making it somewhat difficult to get me out of the house. Roadblock? Yikes! It would seem so, huh?
It’s unfair, difficult, and ridiculously bloody painful on top of what we already feel - but if you’re a CRPS/RSD sufferer looking for relief (like me!) studies have shown that continued long term exercise & involvement may just be the ticket (click here to find out why). If getting up and out of my bed is a crucial and distinct part of my healing process, I’m definitely gonna try my best to make it work - needing major inspiration along the way, of course…
*SO: LET THE FOLLOWING PHOTOS STAND AS A TESTAMENT TO THE FACT THAT PERHAPS THE OUTDOORS AREN’T OH-SO-TERRIBLE, BUT MAYBE ARE PRETTY GREAT AFTER ALL :)
Don’t leave me hanging though! If I can sometimes brave it, then you can too!
(So long as your healthcare professional agrees of course…)
We found this poor little baby leatherback turtle completely by chance in a nest that had been smashed in by hunters. He was totally crusted over by sand and on the verge of suffocation - however with a little love and care, he bounced right back and was able to be released. Keep your eyes open, it’s not necessarily always people who inspire!
(If you’re on the home page, click below to continue reading!)
Fishing is a huge part of our culture, which is lucky for me as I really enjoy it. Unfortunately, it may at times be quite taxing, meaning that it’s not always necessarily the best activity-choice right now. That’s ok though! See that middle picture? That’s me just enjoying the moment instead! Taking in what’s going around me, acting as official photographer, generally just having a happy day. Now who wouldn’t want to be outdoors after imagining that?
Although this picture was indeed taken post-crushed foot, meaning that it was indeed taken post-diagnosis of CRPS/RSD, it’s now gotten infinitely harder for me to surf since my CRPS/RSD has crept through my limbs to become full body. Still… on so called ‘bad days’ (yuck! hate that phrase!) I can sit on the surfboard enjoying the waves, I can swim while Josh surfs, or at the very least I can…
… stay on the beach with a book and a smile. I actually couldn’t walk at this phase of my healing, so there are definitely no excuses on this one, people ;)
If all else fails - grab a cute boy and float!
Hope your weekend was fantastic. I’ve just gotten back to California from Chicago, so I’ll update you all on my treatment soon as I get settled.
Loads of love,
Danielle Alexis xx