Esquire Theme by Matthew Buchanan
Social icons by Tim van Damme

13

May

Sorry! I’ve been out to lunch! 
A very, very long lunch that included a rager of a Ketamine Treatment up at Rush Hospital in Chicago to handle this CRPS/RSD. Oof! 
I’ve been missing you all very much though! Loving your emails, they always keep me strong - you all are the most inspiring bunch I’ve ever come across. 
And have you seen me on Twitter?! You can always catch me there! 
I’ll be right back though. I promise. xx

Sorry! I’ve been out to lunch!

A very, very long lunch that included a rager of a Ketamine Treatment up at Rush Hospital in Chicago to handle this CRPS/RSD. Oof! 

I’ve been missing you all very much though! Loving your emails, they always keep me strong - you all are the most inspiring bunch I’ve ever come across. 

And have you seen me on Twitter?! You can always catch me there! 

I’ll be right back though. I promise. xx

03

May

HOW I OFTEN FEEL ABOUT CRPS/RSD & NERVE PAIN MEDICATION.

Jules Valles in ‘L’enfant’: “L says something absolutely brilliant that should be taught the World over! Not to mention it should be taken in a way that may be applied to all of us dumbfounded by such wisdom ;espace m’a toujours rendu silencieux”

(English: “Space had always defeated me to silence”.)

Layman’s term’s: Oh lawd! This is overwhelming!

29

Apr

05

Apr

You cannot avoid pain, but you can chose to overcome it. / Paul Coelho

image

04

Apr

Chronic Back Pain? xx
(Image via Alejandro Annicharico)

Chronic Back Pain? xx

(Image via Alejandro Annicharico)


04

Mar

Case of the Mondays? Let’s Shake that Up… 

Good Morning from California! It’s the start of a brand new week and if you’re anything like me, your feet are likely dragging a little as you struggle to get back in to your groove. So how about this? Instead of filling up on caffeine like it’s going out of style, start your week off with this insanely inspirational video of which I’ve never quite seen the like!

Follow Arthur - a disabled Gulf War Veteran - on a near miraculous journey back to health, as he practices yoga to challenge the ‘medical diagnosis’ that he will never walk again. 

Be motivated!!! After all, there’s really no better time than the present. Am I right? Wipe those tired eyes, lift those dragging feet, and - no matter how cheesy this next line may be - PROUDLY make today the “first day of the rest of your life!”

I’m right there with you taking my own advice on this one! Not gonna lie, I’m also right there with you sobbing my eyes out because of this video. Ha! Hope everyone had a grand weekend. - Danielle xx

(Video via YouTube)

02

Mar

My philosophy is no pain, no pain.” / George Carlin

12

Jan

Today I have a 6/6 record (that would be perfect…) of: ‘Trying to get out of bed but failing miserably’. Who would like my autograph? xx

image

12

Dec

"Chronic Pain Affects Memory and Mood" - Or Does It?

Constant discomfort may halt neuron growth in the hippocampus

You know I love a good pun! And in my opinion, the article “Chronic Pain Affects Memory and Mood” (read by clicking here, or on the above headline) - while indeed scientific - may be ‘disproven’ simply by the Chronic Pain Patient taking a ‘Mind over Matter’ approach, per say. 

Am I claiming that Chronic Pain does not affect memory and mood? Absolutely not. As a patient myself, I know firsthand how frustratingly fuzzy life can at times seem. Instead, I’m claiming that Chronic Pain does not necessarily have to permanently and negatively affect memory and mood.

Of course, education is key, and it’s only responsible that we learn as much as we can about our conditions. However, I believe that should we entirely believe in this science, should we base our entire existence as Chronic Pain patients on these studies - especially those based on the brain, an organ we ultimately know so little about (who knows what unknown realm is compensating up there!) - we run the risk of ‘embodying the rat’, so to speak. 

What I mean is… suppose that you’re an ‘adult’ Chronic Pain sufferer in your very exciting first year of university! You work really hard, but with your pain condition - as is to be expected - some days are tougher than others. You’re smart. You’re organized. You do what you can to stay on top of your game. BUT… at times you’re foggy. In addition to this, the constant pain wears down on you and negatively affects your mood. As I said, some days are tougher than others. 

You can choose to define yourself by this study. Or you can choose to do what it takes. 

Would it really be wise to tell an ‘adult’ Chronic Pain sufferer about to begin university that they have an impaired memory? That it’s not to be regained? Not by my books. No, thank you. How could we ever expect any progress? 

Pain doesn’t make you any less of a person! In fact, I’m actually appreciative of my tough days. Before I have you asking, “Wait, what - is she a nut job?!” let me explain myself…

I feel as though - through all of my fuzziness and emotional wear and tear - I’ve been lucky enough to learn at a young age, that to keep on keeping on, the added value of a little extra hard work and some good organizational skills never hurt anyone. As things thankfully start to look up with my new treatment, so does my work. 

Maybe they need to test some new mice. There’s no impairment here, thanks. 

Be well, everyone! - Danielle xx

(Ps: this is my opinion. I’m not a scientist. But then again, they aren’t patients…)