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29

Mar

Looking for love, peace, or a little relief from that ever-nagging pain?Whatever you’re low on, find it through stillness!

The amazing Gabby Bernstein is giving away FREE guided meditations today over at: www.gabbyb.tv/free-meditation — 

The power of mindfulness is a pretty amazing thing! Why not give it a try? For free! xx

Looking for love, peace, or a little relief from that ever-nagging pain?

Whatever you’re low on, find it through stillness!

The amazing Gabby Bernstein is giving away FREE guided meditations today over at: www.gabbyb.tv/free-meditation

The power of mindfulness is a pretty amazing thing! Why not give it a try? For free! xx

19

Dec

2 more days until sweet Sam walks down the aisle! It only makes sense that I be on the Internet with her something blue… xx

2 more days until sweet Sam walks down the aisle! It only makes sense that I be on the Internet with her something blue… xx

18

Dec

Sometimes things are quite simple. xx

Sometimes things are quite simple. xx

30

Nov

There are two kinds of pain: the sort of pain that makes you strong. Or useless pain - the sort of pain that’s only suffering. I have no patience for useless things.”/ House of Cards

11

Nov

Back in Philly for more CRPS/RSD treatment. Wish me luck! xx
(at Hahnemann University Hospital)

Back in Philly for more CRPS/RSD treatment. Wish me luck! xx

(at Hahnemann University Hospital)

01

Nov

Any & all girls in #hospital gowns this Halloween , y’all are princesses. Costume or not.

Any & all girls in #hospital gowns this Halloween , y’all are princesses. Costume or not.

02

Oct

It Was Empowering, If Not a Little Ridiculous…  
There are very few causes and perhaps fewer people for which I’d risk the embarrassment of posing in my hospital gown and snapping a pic in the seconds I had to myself at the doctor’s office today. 
… And for the record, yes, I was indeed caught by the nurse. Oh what an embarrassment…
My “Hospital Gown and CRPS/RSD Orange Bracelet Chic” was inspired by this original “MRI Ready to Wear S/S 14” look, as seen on my incredible friend Allira Swick. She’s a fearless Aussie fashion icon (shocker!) and also a blogger over at The Fainting Fox.
Allira has Chronic Pain as well following a recent and seriously horrifying bite from one of those nasty Australian spiders people rarely live to tell the tale of. She’s come out of it relatively alright (Chronic Pain means you’re never really alright, are you?) only due to the help of ketamine infusions. Yes, sir! Those would be the very same ketamine infusions that you’ve seen here, here, and here, etc. (I mean, have you seen my Twitter? I feel as though Ketamine actually writes it half the time…). The very same ketamine infusions that have helped me to hugely battle my CRPS/RSD in order to live as normal a life as possible. 
But I’m starting to get a little off topic. What I want to say is thank you to Allira! I had a lot of fun taking this picture. And fun is not a word I think I ever thought I’d come to use in relation to a hospital robe! I’ve come to wear this garment in so many horrifically painful situations that to me it had become more of a straitjacket than just a robe - without a back, even! 
I found this incredibly empowering. If not a little ridiculous.
And I think you ALL should get involved. Send pictures to theproject3x5@gmail.com or tweet me @theproject3x5
So excited to see what you send! xx

It Was Empowering, If Not a Little Ridiculous…  

There are very few causes and perhaps fewer people for which I’d risk the embarrassment of posing in my hospital gown and snapping a pic in the seconds I had to myself at the doctor’s office today. 

… And for the record, yes, I was indeed caught by the nurse. Oh what an embarrassment…

My “Hospital Gown and CRPS/RSD Orange Bracelet Chic” was inspired by this original “MRI Ready to Wear S/S 14” look, as seen on my incredible friend Allira Swick. She’s a fearless Aussie fashion icon (shocker!) and also a blogger over at The Fainting Fox.

Allira has Chronic Pain as well following a recent and seriously horrifying bite from one of those nasty Australian spiders people rarely live to tell the tale of. She’s come out of it relatively alright (Chronic Pain means you’re never really alright, are you?) only due to the help of ketamine infusions. Yes, sir! Those would be the very same ketamine infusions that you’ve seen here, here, and here, etc. (I mean, have you seen my Twitter? I feel as though Ketamine actually writes it half the time…). The very same ketamine infusions that have helped me to hugely battle my CRPS/RSD in order to live as normal a life as possible. 

But I’m starting to get a little off topic. What I want to say is thank you to Allira! I had a lot of fun taking this picture. And fun is not a word I think I ever thought I’d come to use in relation to a hospital robe! I’ve come to wear this garment in so many horrifically painful situations that to me it had become more of a straitjacket than just a robe - without a back, even! 

I found this incredibly empowering. If not a little ridiculous.

And I think you ALL should get involved. Send pictures to theproject3x5@gmail.com or tweet me @theproject3x5

So excited to see what you send! xx

18

Sep

Things haven’t been easy for the last few days - running into weeks, actually - over here at Casa de Cosgrove. I’ve recently moved from California to Texas, and the constant pressure changes are playing on my last, ferocious and fiery nerve. I’ll admit that I’m not the umm, easiest person to deal with when it comes to times like this, and I think that’s terrible! I mean, everyone has something right? So we should all be kind. We should absolutely all be nice.
How do y’all deal with it? Are there any other Texans on here in chronic pain dealing with this long lasting pressure issue? Any advice? 
My body has been desperately thirsting for any sort of relief, and tonight I may have finally found it! Surprisingly, hope wasn’t to be found amongst the countless extra remedies recently added to my bedside table. This newfound optimism didn’t suddenly Jack-in-the-Box-style pop out of a pill case (although how cool would that be?! Positivity on demand!). Nope. I’ve nixed all of that and gone for something time-tested and old-fashioned. It’s called wisdom. Imagine that, eh? 
Perhaps you’d already guessed from the picture above, but I’ve decided to start taking a daily dose of Dolly. Yup, Dolly Parton. I absolutely adore what she has to say! Her quote (above) is brilliant and gives the whole wizened “one day at a time” approach a fresh perspective. It is so necessary for those of us with Chronic Pain to indeed think with an “each day is a fresh start” mentality so as not to get cranky, awful, moody, mean, and just unjustifiably (yup! unjustifiable. mean is never justifiable) horrible when the pain has gone on for days or weeks, perhaps months or even years! And may indeed go on for many more. 
Break. It. Up. 
Maybe one day in your pain flare will be just slightly better than the rest! If you see each day as a fresh start, you’ll take advantage of this! You’ll notice that the pain has decreased - even if just by a tiny, minuscule amount - and you’ll get up and do something lovely! Who knows… this positive kickstart of a day might just roll you over into something else that’s not just lovely, but brilliant! 
If you take the same scenario of having a day that’s slightly better than the rest, but you remove Dolly’s philosophy and instead think in terms of the fact that your pain is just a loooooong stretch of “bad weather” or “low pressure” or “shit general pain I hate my life and I’m not getting out of this bed!” you’re clearly not going to take advantage of the day, or week, perhaps even of the month. You’ll get frustrated, and aggravated, amongst other things. It can happen to the best of us. 
So, “If you’re feeling low, don’t despair. The sun has a sinking spell every night, but it comes back up every morning.” - Dolly Parton
Lots of love to you all! Happy Wednesday! It’s almost the weekend!
Be Well - Danni
Ps - Lots of prayers and positive vibes going out on this end to our dear friend and Project3x5’er, Misty. Unfortunately, as she points out, her past Friday 13th lived up to it’s nasty little stereotype. Poor thing ended last work week with not just a totaled car, but worse yet, extensive injuries from the sheer force and subsequent downpour of shattered glass caused by the collision.
I know it may seem an odd thing to say when Misty is so incredibly banged and stitched up, but knowing that her precious child wasn’t on board and having seen the vehicle ‘after’ pictures - it’s something to be truly thankful for that things aren’t any worse. 
So, lots of love to you, Misty! I’m thrilled you’re going to be ok! I hate that something as drastic as this must often act as the reminder, but I know I’ll squeeze my loved ones extra hard tonight. I’ll be counting you all twice in my blessings as well…
Wishing you a speedy recovery, Misty! Along with bunches of spoiling in the meantime! That goes for all of you in recovery or having an extra tough time at the moment.
Be well and be SAFE! - Danni xx

Things haven’t been easy for the last few days - running into weeks, actually - over here at Casa de Cosgrove. I’ve recently moved from California to Texas, and the constant pressure changes are playing on my last, ferocious and fiery nerve. I’ll admit that I’m not the umm, easiest person to deal with when it comes to times like this, and I think that’s terrible! I mean, everyone has something right? So we should all be kind. We should absolutely all be nice.

How do y’all deal with it? Are there any other Texans on here in chronic pain dealing with this long lasting pressure issue? Any advice? 

My body has been desperately thirsting for any sort of relief, and tonight I may have finally found it! Surprisingly, hope wasn’t to be found amongst the countless extra remedies recently added to my bedside table. This newfound optimism didn’t suddenly Jack-in-the-Box-style pop out of a pill case (although how cool would that be?! Positivity on demand!). Nope. I’ve nixed all of that and gone for something time-tested and old-fashioned. It’s called wisdom. Imagine that, eh? 

Perhaps you’d already guessed from the picture above, but I’ve decided to start taking a daily dose of Dolly. Yup, Dolly Parton. I absolutely adore what she has to say! Her quote (above) is brilliant and gives the whole wizened “one day at a time” approach a fresh perspective. It is so necessary for those of us with Chronic Pain to indeed think with an “each day is a fresh start” mentality so as not to get cranky, awful, moody, mean, and just unjustifiably (yup! unjustifiable. mean is never justifiable) horrible when the pain has gone on for days or weeks, perhaps months or even years! And may indeed go on for many more. 

Break. It. Up. 

Maybe one day in your pain flare will be just slightly better than the rest! If you see each day as a fresh start, you’ll take advantage of this! You’ll notice that the pain has decreased - even if just by a tiny, minuscule amount - and you’ll get up and do something lovely! Who knows… this positive kickstart of a day might just roll you over into something else that’s not just lovely, but brilliant! 

If you take the same scenario of having a day that’s slightly better than the rest, but you remove Dolly’s philosophy and instead think in terms of the fact that your pain is just a loooooong stretch of “bad weather” or “low pressure” or “shit general pain I hate my life and I’m not getting out of this bed!” you’re clearly not going to take advantage of the day, or week, perhaps even of the month. You’ll get frustrated, and aggravated, amongst other things. It can happen to the best of us. 

So, “If you’re feeling low, don’t despair. The sun has a sinking spell every night, but it comes back up every morning.” - Dolly Parton

Lots of love to you all! Happy Wednesday! It’s almost the weekend!

Be Well - Danni

Ps - Lots of prayers and positive vibes going out on this end to our dear friend and Project3x5’er, Misty. Unfortunately, as she points out, her past Friday 13th lived up to it’s nasty little stereotype. Poor thing ended last work week with not just a totaled car, but worse yet, extensive injuries from the sheer force and subsequent downpour of shattered glass caused by the collision.

I know it may seem an odd thing to say when Misty is so incredibly banged and stitched up, but knowing that her precious child wasn’t on board and having seen the vehicle ‘after’ pictures - it’s something to be truly thankful for that things aren’t any worse. 

So, lots of love to you, Misty! I’m thrilled you’re going to be ok! I hate that something as drastic as this must often act as the reminder, but I know I’ll squeeze my loved ones extra hard tonight. I’ll be counting you all twice in my blessings as well…

Wishing you a speedy recovery, Misty! Along with bunches of spoiling in the meantime! That goes for all of you in recovery or having an extra tough time at the moment.

Be well and be SAFE! - Danni xx

11

Sep

It’s Invisible Illness Week!!! xx

"It’s the moooost wonderful time of the year… " - umm, awareness-wise that is!

Why? Well, between this month being Pain Awareness Month, this week being Invisible Illness Week, and November or NERVEmber just around the corner… there’s so much going on! 

image

I’m currently working on an amazing list of activities for you to join in on the advocacy and fun, but until then, why not start off at www.invisibleillnessweek.com

There, you’ll not only find incredible blogs you might just relate to in a huge way - you can submit your own, too! But, you’ll also find cool downloads, gifts(!), podcasts, webinars, creative campaigns, helpful hints, and best of all scheduled chats where you can meet friends. 

Guys, I haven’t even scratched the surface. This website goes into overdrive for 1 week a year, so let’s make the best of it to get the word out!!! 

We may, “Look just fine! Great in fact!” but we’re still ill. It’s a double edged sword to look well but not feel it, and it’s TOUGH to live this way. It’s constant limbo, and on the one hand, yes… looking well is a lovely bonus. But on the other, our illnesses are constantly overlooked and often even taken as a joke.

So, this year help get the word out that perhaps we mustn’t only judge books by their covers. We also mustn’t be too quick to judge our fellow human beings. xx

Lots of love to you all! 

Be Well - Danni xx

PS: Find Invisible Illness Week on Twitter @invisibleillwk and use the hashtag #iiwk13 to get in on the action :) 

05

Sep

Yay! My feet are tolerating “shoelace shoes” today :) I proudly choose to wear orange in honor of September being Pain Awareness Month! Click here to find out more from the Power of Pain Foundation’s Facebook Page.

Yay! My feet are tolerating “shoelace shoes” today :) I proudly choose to wear orange in honor of September being Pain Awareness Month! Click here to find out more from the Power of Pain Foundation’s Facebook Page.