Esquire Theme by Matthew Buchanan
Social icons by Tim van Damme

09

Apr

"How not to say the wrong thing..." Someone you know ill? Watch what you say and to whom.

Yikes! And there it is… that horrible, despicable, intensely cringeworthy moment. Uncle Merv has once again decided to explain the ins and outs of his knee surgery - performed 20 years ago, mind you - while the current patient sits silently, gritting her teeth in a combination of severe agony and angst. The patient’s thumb pounds the powerful red morphine button just a second too late; And as she softly drifts off, her relief is all-too-often interrupted by the words of recent AA convert Aunt Maggie warning of the dangers that modern medicine will most definitely bring.  

Let’s get this straight…

Someone you know ill? Watch what you say. Watch where you say it. Watch to whom. Watch when.

Furthermore…

A slipped disk does not even remotely compare to Lupus. Nope.

Child birth does not compare to CRPS/RSD. Nice try. Wanna trade?

A double hip replacement is in no way, shape, or form the same as a Mastectomy.

NO! NO! NO!

Last but not least…

Shhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh!

If the patient wants to talk, you don’t get to. No ifs, ands, or buts on that one. If the patient wants to cry, you get tissues. No ifs, ands, or buts on that one. You see where I’m going? The LA Times really got this. They even drew a diagram. It’s amazing and you should read the article. Ok? Click on the headline. 

Ps: Ice cream. Always. And tea. Cups & cups.

(Trust! I am small, but I am wise.) xx

**It should be noted though, that while I agree with the LA Times on their analysis of how annoying it is for totally ridiculous medical conditions to be compared (Not a joke: I’ve had far too many randoms approach me at the grocery store to tell me about their golf injuries for it to be ok anymore…) I don’t 100% agree with their ‘ring theory’.

Why not? I find that one of the most balancing things for me has been my amazing friends and followers coming to me with their problems. Dump IN, Comfort IN and OUT… per say. It makes me feel real. Like a proper person capable of handling things. Besides, is that not my job?! To make people feel better in some small way? If I can’t do that then what’s left?*

10

Mar

Spooning with Alton…
(via The Spoon Theory Facebook Page)
Tweet
]]>

Spooning with Alton…


(via The Spoon Theory Facebook Page)

09

Mar

Inspire Yourself - One Lazy Activity at a Time… 
Ticket officially booked to return to Trinidad for mid-April! Literally could not be more excited! 
I find that when having a tough time or rough go at things, it helps in such a huge way to constantly keep coming up with stuff to look forward to. Keep a diary and write down what’s coming up! Before you know it, you’ll find that you’ve turned that frown upside down.
Now, obviously a vacation to Trinidad isn’t a realistic thing that I can look forward to monthly. But, I can definitely look forward to watching my favorite show ‘Survivor’ every Wednesday! Boom… it goes in the diary! Have you ordered something online that’s due to arrive on a certain date? Write that in there, too!
See what I mean? Before too long, you’ll have an amazing booklet filled with positive achievements and memories that made you very happy indeed. Now what could be better inspiration than that? 
- Lots of love! Happy Weekend! Danielle xx
Tweet

// ]]]]]]>
// ]]]]>]]>

Inspire Yourself - One Lazy Activity at a Time… 

Ticket officially booked to return to Trinidad for mid-April! Literally could not be more excited! 

I find that when having a tough time or rough go at things, it helps in such a huge way to constantly keep coming up with stuff to look forward to. Keep a diary and write down what’s coming up! Before you know it, you’ll find that you’ve turned that frown upside down.

Now, obviously a vacation to Trinidad isn’t a realistic thing that I can look forward to monthly. But, I can definitely look forward to watching my favorite show ‘Survivor’ every Wednesday! Boom… it goes in the diary! Have you ordered something online that’s due to arrive on a certain date? Write that in there, too!

See what I mean? Before too long, you’ll have an amazing booklet filled with positive achievements and memories that made you very happy indeed. Now what could be better inspiration than that? 

- Lots of love! Happy Weekend! Danielle xx

05

Mar

If Laughter is the Best Medicine! 
Here’s something to help all those suffering today! xx
(Image via CartoonStock.com)
Tweet

// ]]]]>]]>

If Laughter is the Best Medicine! 

Here’s something to help all those suffering today! xx

(Image via CartoonStock.com)

02

Mar

My philosophy is no pain, no pain.” / George Carlin

28

Feb

It’s Rare Disease Day today! 

Want to learn more about it? The short video above is a brilliant start!

Of course, there’s also loads of info up on the official website (www.rarediseaseday.org). There, among other things, you’ll find news, fundraisers - like the oh-so-simple! one still happening right here on TheProject3x5 - and last but not least all sorts of activities that will allow you to interact on a global scale with others in a similar situation. 

The slogan this year for the 6th annual Rare Disease Day is “Rare Disorders without Borders” emphasizing the need for international cooperation. Well, it just so happens that one of the things I’m most proud of about TheProject3x5 is how far-reaching and global my readership is. So everyone get involved! Go to the official website and go beyond your border for your rare disorder! Let’s demonstrate global solidarity and show them what we’re about. 

You guys are the best! Thank you so much for your strength and the inspiration that you provide for me every single day. Lots and lots of love. - Danielle xx

26

Feb

To-do: Appreciate.

My to-do lists have recently each seemed as long as me. Ay! Overwhelming. You know the type, I’m sure! At first glance each list leaves me longing to simply curl up in a ball, house cat style, to just ignore all tasks completely. Sort of an: If I can’t see them, they can’t see me type of thing. It’d be nice sometimes, no?

Yet things need to get done, so we drudge our ways through the busy days (rhyme!) robotically scratching things off almost as if we’ve been set to autopilot.

Dogs fed? Stretches Done? Bills paid? Deadline met? Enough exercise? Meal made? etc.

And on and on and on it goes. Day in, day out, and day back in again. 

Yet, this morning prior to tackling the extremely messy, doodled and almost illegible handwritten list of my own, I was slooowly drinking my coffee and clicking my way through cyberspace (avoidance and procrastination are key when dealing/non-dealing with to-do lists…) when I stumbled on a list that has now made me appreciate and - dare I say it? - even enjoy tackling the most mundane and even dreaded tasks on my to-do lists. Yup!

image

“Be grateful.” “Trust.” “You are one of a kind.” “Happiness.” 

All of these (and many, many other) keywords on the above list, gave me the slap around the head I needed to remember that not so long ago, a to-do list would have been absolutely impossible for me. I longed for a to-do list - whether only one task long or two. I remember back to when, along with impossibly unexplainable horrific pain, walking was an absolute impossibility, leaving me to sob for the fact that I couldn’t just get up to simply do a silly chore such as clear the dishes. 

I’m about to leave too many out, but now think of those in the hospital desperately waiting on good news, the paralyzed & paraplegic for whom everything is ‘that’ much more difficult, and all those confined by any severe or chronic illness: the ones whose houses have slowly become remote island prisons.

Imagine their craving for normality. The hustle-and-bustle of everyday life. Namely - the hassle of a to-do list. 

Sometimes all you need is a little perspective to shake your system. Does this mean that I’ll forever sing like Cinderella everyday as I make my bed? I’m guessing probably or definitely not. But I will always appreciate that I was able to do it! From now on, I’ll be thankful for the hassle of my to-do lists, each silly little chore will be looked on as an honor, and as for all those fantastically satisfying check marks? Visible signs allowing me to count up my many blessings. :)

I hope that you’re day has been stress and pain free! Stay warm if you’re somewhere cold. Wear sunscreen if you’re somewhere hot. 

Lots of love, Danielle xx

23

Jan

BOOK REVIEW: "Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying", by Maggie Callanan & Patricia Kelley

Let’s face facts: I write about my fair share of difficult topics on TheProject3x5. I have to thank y’all loads for sticking by and trusting me despite the sometimes depressing subjects that are brought up. I ask that despite the very realistic title of the book above, you take the time to read this blog post - especially the very healthiest of you… 

There are so many gifts that those of us living may take from those who are passing away. Whether they be on communication, love, spirituality, hope, forgiveness, or wisdom. They are final gifts, indeed! 

If the words in the following paragraphs from co-author Maggie Callanan are any indication of what’s in the book - and, for the record, they are! - it’s definitely worth a read. Of course, fortunately we may not all be dealing with death at all times - and so, I suggest you apply the words to any difficult situation (chronic illness, divorce, depression etc.). For example: When the standard, “How are you?” just won’t do - what is the right thing to do/say and when? 

How To Best Help A Sick Loved One: 


“First and most important: Meet the ill person where she is. She may be in denial, and denial is a fabulous crutch. You don’t pull a crutch out from under somebody. Try to validate the feelings behind the denial. So imagine your aunt says, ‘Let’s reserve a house at the lake this summer. I loved the weeks we used to spend there.’ You don’t rush out to make a reservation; you reminisce with her about those good times. She’s living in memories much kinder than her reality.

“But let’s say she tells you, ‘You know, I’m not going to live much longer.’ Or, ‘I am in so much pain and feel so ill. I hate that I can’t do many things I love anymore.’ The door’s open. Be honest, direct. Tell her you hate that this is happening. Tell her it mattered that she was here. Tell her how she enriched your life, that she won’t be forgotten. This is no time to pussyfoot. For God’s sake, don’t tell her she looks great, or that she’ll pull through. Pretending creates a chasm of loneliness for the sick. Can you imagine if you were in labor, and no one in the room would acknowledge that you were giving birth?

“Toward the end or when in pain, ill people tend to withdraw. You know how when you drop a pebble in a pond, the rings ripple out? When a person is seriously ill, the rings go in. It doesn’t matter what’s happening in politics or sports or the next room. Eventually all that matters is ‘I’m hot. I’m cold. I love you. Do you love me?’ At that point, all that’s required is your presence. Be quiet. Put your hands on hers. That’s it.”

The ladies, both hospice workers, write beautifully and in such a way that it’s easy to apply what’s written to many different difficult situations. It’s a beautiful education.

21

Jan

On Strength, Speaking too Soon, & The Art of Things Going Spectacularly Right.

image

On TheProject3x5 all things are possible! So, let’s go back in time..! All the way to last week and the short post on my perfection of staying in bed. Remember it? I know, I know… I’m asking a lot after what was most likely a busy week filled with pain, stress, treatments, etc. But it’s important! Click here for a quick refresher. There’s backtracking to be done! Turns out I spoke too soon… 

image

I promise in advance that all of this writing will in the end have something to do with pictures of horses and with me getting out of bed…

One of my very best friends, Danielle (go figure!), berates me in the best of ways with the A.A. Milne quote, “You’re braver than you believe, and stronger than you seem, and smarter than you think.” This token of hope, strength, and wisdom is an amazing little tool and a wonderful reminder to have in an ‘ill one’s’ back-pocket when nothing else will do… but at the end of the day, when you think about it and put the quote into context… we ‘ill ones’ ultimately don’t actually need it.

Why? Well, having a Chronic Illness, being ‘sick’, and/or clawing your way back from the edge (feel free to put this into context if you’ve never been ill but have had to work hard for something, have had some sort of trauma, anything you’d like…) has already allowed you to prove to yourself once and for all that you ARE braver than you believe - perhaps braver than anyone initially believed! For the record… that was not a calming experience, People! It was scary! You felt alone. But you made it through the tunnel and you’re out the other side. Or you will be, soon. After dark comes light.

You’re damn strong too! Satisfyingly so! I’ll bet you don’t even realize it, but someone out there most likely looks up to you. You’re a survivor. A fighter. You held on and look at what you made it through!

Perhaps most importantly, however, you are so much, so mind-blowingly much, smarter than you seem. Because on top of everything that you dealt or are dealing with, you made it through the awful brain fog. Hell, you may simply exist in the awful brain fog… but that’s ok too! You’re still a clever-clogs! Do you know how much your poorly little brain is still managing to do in the middle of a brain-weather nightmare? No one should expect that you’d be 100% functioning normally with all of this, yet you probably strive to. You’re smarter than you think. 

So what’s this got to do with me, bed, and with pictures of horses..? 

image

On my 7th attempt to get out of bed last week, Mr. A.A. Milne and all that his quote has stood for in my fight against CRPS/RSD, decided to kick my little butt into gear and remind me that I am indeed brave, strong, and smart. And though she was a continent away and no where to be seen, Danielle’s face seemed to hover reminding me that I’ve seen worse, I’ve seen better, and I’ve never been one to lay down without a proper fight. 

My 7th attempt found me out of bed and on a friend’s farm. 

image

There will still be days for now when I will need my bed - part of any strength in a fight like this also comes in knowing and accepting that - but thankfully, this turned out not to be one of them. The weather, the company, and the setting were perfect! And as my last weekend in Trinidad, I’m thrilled I didn’t miss out.

image

Sometimes things go spectacularly right. I could not have felt more blessed. 

Lots of love, Danielle xx

Ps: Danielle is ironically fighting the fact that she has broken bones on both feet. Get well soon, Dan! xx