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13

May

Sorry! I’ve been out to lunch! 
A very, very long lunch that included a rager of a Ketamine Treatment up at Rush Hospital in Chicago to handle this CRPS/RSD. Oof! 
I’ve been missing you all very much though! Loving your emails, they always keep me strong - you all are the most inspiring bunch I’ve ever come across. 
And have you seen me on Twitter?! You can always catch me there! 
I’ll be right back though. I promise. xx

Sorry! I’ve been out to lunch!

A very, very long lunch that included a rager of a Ketamine Treatment up at Rush Hospital in Chicago to handle this CRPS/RSD. Oof! 

I’ve been missing you all very much though! Loving your emails, they always keep me strong - you all are the most inspiring bunch I’ve ever come across. 

And have you seen me on Twitter?! You can always catch me there! 

I’ll be right back though. I promise. xx

03

May

HOW I OFTEN FEEL ABOUT CRPS/RSD & NERVE PAIN MEDICATION.

Jules Valles in ‘L’enfant’: “L says something absolutely brilliant that should be taught the World over! Not to mention it should be taken in a way that may be applied to all of us dumbfounded by such wisdom ;espace m’a toujours rendu silencieux”

(English: “Space had always defeated me to silence”.)

Layman’s term’s: Oh lawd! This is overwhelming!

29

Apr

14

Apr

Being happy doesn’t mean that everything is perfect. It means that you’ve decided to look beyond the imperfections.”/ Unknown
Much easier said than done! But, with a little (ok, a lot…) of mindfulness, how amazingly strong do we feel through the moments we’re able to achieve this? xx

09

Apr

"How not to say the wrong thing..." Someone you know ill? Watch what you say and to whom.

Yikes! And there it is… that horrible, despicable, intensely cringeworthy moment. Uncle Merv has once again decided to explain the ins and outs of his knee surgery - performed 20 years ago, mind you - while the current patient sits silently, gritting her teeth in a combination of severe agony and angst. The patient’s thumb pounds the powerful red morphine button just a second too late; And as she softly drifts off, her relief is all-too-often interrupted by the words of recent AA convert Aunt Maggie warning of the dangers that modern medicine will most definitely bring.  

Let’s get this straight…

Someone you know ill? Watch what you say. Watch where you say it. Watch to whom. Watch when.

Furthermore…

A slipped disk does not even remotely compare to Lupus. Nope.

Child birth does not compare to CRPS/RSD. Nice try. Wanna trade?

A double hip replacement is in no way, shape, or form the same as a Mastectomy.

NO! NO! NO!

Last but not least…

Shhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh!

If the patient wants to talk, you don’t get to. No ifs, ands, or buts on that one. If the patient wants to cry, you get tissues. No ifs, ands, or buts on that one. You see where I’m going? The LA Times really got this. They even drew a diagram. It’s amazing and you should read the article. Ok? Click on the headline. 

Ps: Ice cream. Always. And tea. Cups & cups.

(Trust! I am small, but I am wise.) xx

**It should be noted though, that while I agree with the LA Times on their analysis of how annoying it is for totally ridiculous medical conditions to be compared (Not a joke: I’ve had far too many randoms approach me at the grocery store to tell me about their golf injuries for it to be ok anymore…) I don’t 100% agree with their ‘ring theory’.

Why not? I find that one of the most balancing things for me has been my amazing friends and followers coming to me with their problems. Dump IN, Comfort IN and OUT… per say. It makes me feel real. Like a proper person capable of handling things. Besides, is that not my job?! To make people feel better in some small way? If I can’t do that then what’s left?*

05

Apr

You cannot avoid pain, but you can chose to overcome it. / Paul Coelho

image

04

Apr

Chronic Back Pain? xx
(Image via Alejandro Annicharico)

Chronic Back Pain? xx

(Image via Alejandro Annicharico)


30

Mar

Exactly 3 years to the day since the accident that triggered my CRPS/RSD. Many more than 3 people to thank for empowering me on this journey through love, hope, positivity, and faith. Couldn’t have gotten here without y’all. xxx

26

Mar

It’s All Coming Up Roses…
In New York City with my Dan!
The grand experiment continues… xx

It’s All Coming Up Roses…

In New York City with my Dan!

The grand experiment continues… xx