And so the show will go on after all! My goodness, it’s been a roller coaster of emotions over the past week or so hasn’t it? Wow! (If you’ve missed the drama click here to get caught up… and if you’re new click here to read the story of my original accident and CRPS/RSD journey).
Firstly, I want to thank you all so much for the heartfelt comments, messages, and emails that have been both supportive and in commiseration. I couldn’t have gotten through the last week or so without y’all. Also, thank you for your voices in general. It is wonderfully inspiring for me to meet so many people dealing on as many different levels and as incredibly well as you all do every single day. How dare I complain when you guys manage it so well and in many cases with so much more to complain about? It keeps me in check! Positivity breeds more positivity, and so I thank you from the bottom of my heart. :)
Secondly, a massive thanks to my doctor (Dr. Timothy Lubenow at Rush in Chicago) and his team who managed to get the insurance decision overturned. Thank God! It was a long, rocky, and excruciatingly painful road to actually even find a doctor who was the right fit for me, but with extreme patience we got there in the end. Have you been down that road too?* There was the problem of doctors not believing me. The problem of them having no game-plan. The problem of them being very negative. The problem of them thinking that I’m in pain and should therefore also be very negative. The problem of them making me feel downright uncomfortable. The problem of them making me outright cry. The problem of zero treatment options. The problem of them gender stereotyping my pain. The problem of them not being very medically aggressive. The problem of them being waaay too medically aggressive. And so this list went on and on and on until finally I found someone that I’m confident and very pleased with. Anyway, THANK YOU! My SCS will go in on Feb. 28th and I could not be more excited. I feel incredibly positive about it all, riding high on your comments and messages. :)
On a more serious note, as Miss. Ally wrote in my comments, the best thing we can do is to NOT SHUT UP about the issue with insurance and chronic pain, especially CRPS/RSD. It is not fair and we do not deserve this. Everyone needs to know that this is a real issue. It’s unfair that those at the insurance company get to decide on our medical treatment instead of our doctors. PAIN IS REAL. OUR PAIN IS REAL. Awareness is key and I truly believe that we should use all of our resources to get the word out there. Retweet all links to every article! Put it on your Facebook! Tell your friends! Post stuff on your blog! Insurance is less likely to mess with a disease that is more of a ‘contender’, so through increased awareness let’s get ourselves in the ring. Funding for research may also make a difference. Perhaps with increased funding, chronic pain and CRPS/RSD will become more of a big-time player in the world of insurance. Of course, this will eventually come through increased awareness, but… if you’re willing and able - please click here to donate through the Reflex Sympathetic Dystrophy Syndrome Association (RSDSA). It is SO appreciated!!!
I’m off to celebrate!
Lots of love,
*If you’re currently looking for a doctor and are on the above frustrating road that I spoke of, I feel for you very much and wish that I could hold your hand. In fact, I’d be pleased to if you suffer with CRPS/RSD - feel free to email me for friendly and unprofessional, yet hopefully helpful advice: firstname.lastname@example.org.
(image via addictedtoescape)
- Insurance !@#$% Rant
- My Story (as guest blogged to Ramshackle Glam)
- Each Time is the Worst, then it Gets Worse
- This is Not the Life I Ordered