Esquire Theme by Matthew Buchanan
Social icons by Tim van Damme

04

Mar

Case of the Mondays? Let’s Shake that Up… 

Good Morning from California! It’s the start of a brand new week and if you’re anything like me, your feet are likely dragging a little as you struggle to get back in to your groove. So how about this? Instead of filling up on caffeine like it’s going out of style, start your week off with this insanely inspirational video of which I’ve never quite seen the like!

Follow Arthur - a disabled Gulf War Veteran - on a near miraculous journey back to health, as he practices yoga to challenge the ‘medical diagnosis’ that he will never walk again. 

Be motivated!!! After all, there’s really no better time than the present. Am I right? Wipe those tired eyes, lift those dragging feet, and - no matter how cheesy this next line may be - PROUDLY make today the “first day of the rest of your life!”

I’m right there with you taking my own advice on this one! Not gonna lie, I’m also right there with you sobbing my eyes out because of this video. Ha! Hope everyone had a grand weekend. - Danielle xx

(Video via YouTube)

22

Jan

“Faith is taking the first step, even when you don’t see the whole staircase.” / Martin Luther King, Jr. 
Here’s to hoping yesterday proved to be an amazing and memorable MLK/Inauguration Day for y’all! Praying it was as pain free and comfortable as possible.  
- All of my love, Danielle xx
Tweet
]]>

Faith is taking the first step, even when you don’t see the whole staircase.” / Martin Luther King, Jr. 

Here’s to hoping yesterday proved to be an amazing and memorable MLK/Inauguration Day for y’all! Praying it was as pain free and comfortable as possible.  

- All of my love, Danielle xx

21

Jan

On Strength, Speaking too Soon, & The Art of Things Going Spectacularly Right.

image

On TheProject3x5 all things are possible! So, let’s go back in time..! All the way to last week and the short post on my perfection of staying in bed. Remember it? I know, I know… I’m asking a lot after what was most likely a busy week filled with pain, stress, treatments, etc. But it’s important! Click here for a quick refresher. There’s backtracking to be done! Turns out I spoke too soon… 

image

I promise in advance that all of this writing will in the end have something to do with pictures of horses and with me getting out of bed…

One of my very best friends, Danielle (go figure!), berates me in the best of ways with the A.A. Milne quote, “You’re braver than you believe, and stronger than you seem, and smarter than you think.” This token of hope, strength, and wisdom is an amazing little tool and a wonderful reminder to have in an ‘ill one’s’ back-pocket when nothing else will do… but at the end of the day, when you think about it and put the quote into context… we ‘ill ones’ ultimately don’t actually need it.

Why? Well, having a Chronic Illness, being ‘sick’, and/or clawing your way back from the edge (feel free to put this into context if you’ve never been ill but have had to work hard for something, have had some sort of trauma, anything you’d like…) has already allowed you to prove to yourself once and for all that you ARE braver than you believe - perhaps braver than anyone initially believed! For the record… that was not a calming experience, People! It was scary! You felt alone. But you made it through the tunnel and you’re out the other side. Or you will be, soon. After dark comes light.

You’re damn strong too! Satisfyingly so! I’ll bet you don’t even realize it, but someone out there most likely looks up to you. You’re a survivor. A fighter. You held on and look at what you made it through!

Perhaps most importantly, however, you are so much, so mind-blowingly much, smarter than you seem. Because on top of everything that you dealt or are dealing with, you made it through the awful brain fog. Hell, you may simply exist in the awful brain fog… but that’s ok too! You’re still a clever-clogs! Do you know how much your poorly little brain is still managing to do in the middle of a brain-weather nightmare? No one should expect that you’d be 100% functioning normally with all of this, yet you probably strive to. You’re smarter than you think. 

So what’s this got to do with me, bed, and with pictures of horses..? 

image

On my 7th attempt to get out of bed last week, Mr. A.A. Milne and all that his quote has stood for in my fight against CRPS/RSD, decided to kick my little butt into gear and remind me that I am indeed brave, strong, and smart. And though she was a continent away and no where to be seen, Danielle’s face seemed to hover reminding me that I’ve seen worse, I’ve seen better, and I’ve never been one to lay down without a proper fight. 

My 7th attempt found me out of bed and on a friend’s farm. 

image

There will still be days for now when I will need my bed - part of any strength in a fight like this also comes in knowing and accepting that - but thankfully, this turned out not to be one of them. The weather, the company, and the setting were perfect! And as my last weekend in Trinidad, I’m thrilled I didn’t miss out.

image

Sometimes things go spectacularly right. I could not have felt more blessed. 

Lots of love, Danielle xx

Ps: Danielle is ironically fighting the fact that she has broken bones on both feet. Get well soon, Dan! xx

11

Jan

Love like dove! No better cure than my Goddaughter’s smile. xx
Tweet
]]>

Love like dove! No better cure than my Goddaughter’s smile. xx

20

Nov

Many of the most significant moments in our lives come not because it all went right but because it all fell apart. Through suffering, creation emerges.

17

Oct

You decide what you should do in life. And you get up and put one foot in front of the other. And after you take enough steps, something good happens.”/ Bill Clinton

31

Jul

You are going to be in horrific pain anyways. Whether you are lying in bed, laying in a bathtub, wearing no clothes, wearing uncomfortable clothes, surrounded by no one, or surrounded by a thousand people - you are going to be in horrific pain anyways. DON’T LET RSD CONTROL YOUR LIFE BECAUSE YOU ARE AFRAID OF THE PAIN. The pain will come and go either way. It might get worse while you are doing something fun and exciting, but it might get worse while you are laying in bed. Wouldn’t you rather being doing something fun and exciting?

Words put perfectly by my fellow fabulous CRPS/RSD fighter, Linda, of the blog ‘Let’s Be Chronically Positive‘ 

20

Jun

Indiana Sunset…
After spending the weekend in Indiana with my cousins, it’s back to the hospital in Chicago. And so the sun sets (beautifully) on my break from reality. 

Indiana Sunset…

After spending the weekend in Indiana with my cousins, it’s back to the hospital in Chicago. And so the sun sets (beautifully) on my break from reality. 

14

Jun

Calling all Pennsylvanians…

Saturday 16th, 2012, marks the 10th annual ‘Walk Two Miles in My Shoes”

It’s a fantastic fundraising fun walk (go on! say that 5 times fast…) taking place near Scranton, Pennsylvania giving you, your support system, and/or simply those of y’all aware of our battle a brilliant opportunity to raise funds for CRPS/RSD research. All proceeds earned will go the Drexel Neurological Associates located in Philadelphia, PA and run by Dr. Robert Schwartzman - quite the ‘world famous’ name in neurology - having even treated President Ford for a stroke. 

Ooo yes, we want him doing research for us people. Can we get as many people as we can involved in this, please?!?! I wish I were there!!!

Now, I understand that 2 miles is perhaps a long distance for those of us with painful legs - but with such a doctor doing research for us, stare down that light at the end of the tunnel! Encourage your loved ones to do it with you! If walking is not an option, wheelchair it! We’ve got canes, piggybacks, bikes, scooters, wagons, & I’m sure you can think of more! Remember the end result and let’s make it fun, people!!! Remember that end result as it could very possibly hold a cure. 

If it is an absolute “NO WAY” in your books - well that’s ok, we’ve all had super painful days!  then encourage your loved ones to do it on your behalf and be sure to meet them at the end where there’ll be food & fun for all. 

If it is an absolute “NO WAY” in your books, then encourage your loved ones to do it on your behalf and be sure to meet them at the end where there’ll be food & fun for all. 

So… let’s get on to the exact details then shall we?  

WHAT? - 10th annual ”Walk Two Miles in My Shoes”. Raising funds for RSD Research. 

WHERE? - McDade Park, Scranton, Lackawanna County, Pennsylvania, 1PM. 

WHY? - Raising funds for RSD Research. Proceeds given to Drexel Neurological Associates. 

For more details watch the above video post! xx

(image via google)