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14

Nov

My Gorgeous Godchild Olivia Is Up, UP… & Walking Away!

While suuuper clever (alright fine! I admit, I may be slightly biased…), this little human’s brain was but a blank canvas only a few months ago. Not to mention the fact that, as a baby, she doesn’t even have proper kneecaps just yet. Can you believe she’s up and away? 

And So… 

If you’re learning to walk or re-walk (as I once did), and/or on any other journey - whether it be of healing & recovery or a more simple one that life has thrown at you… Let little Livie be your inspiration! If she can do it, you can too!

Wash yourself clean. Allow yourself to be reborn! Step-by-step is the perfect way to learn. Fluency comes in time for everything. Your inner strength can move mountains. Tap into that (along with some serious patience!) and slowly but surely - you’ll get it! 

Want to know a secret? It took approximately a year to get me walking again after my accident. Longer if you count stairs. Even longer if you count the fact that I only recently ditched the cane. Alright then, so I’ll admit… it’s taken almost 3 years for me to properly learn how to walk again. 

I’ll try to dig up some footage of the intense physical therapy I went through. Pain, pools, panic. It’s all in there. Nothing pretty about it though. Apart from the peace that I feel now. (So many ‘p’ words! I know! This is like some sort of incredibly depressing Sesame Street segment…) 

At the end of the day though (and I know how frustrating it is to hear this sometimes! bear with me!) we CAN walk. And through our physical lessons, we learn countless emotional ones as well. As our bodies grow stronger, so will we. 

Amaze yourself. xx

18

Jul

Cross Another Off the Bucket List :)
Yay! First hike since being diagnosed with CRPS/RSD!
I can’t believe I was in the hospital so recently!
It just goes to show that anything is possible :) Trust me, if I can push through it (and to be honest… this coming from a girl whose current major passions are: bed, HGTV, and the Golden Girls) you sure can too!
Did parts of it hurt a little? Heck yea! But that’s what life is all about. Even those so called ‘normal people’ (ha!) face challenges on a daily basis. So get out there on a good day* and show yourself what you can do! I’ll bet you’ll be pleasantly surprised. 
Lots more pictures to come of gorgeous Yosemite.
Lots of love & Be Well! - Danielle xx
*I am in no way, shape or form a doctor or health professional. I am simply someone who enjoys to see people like myself grabbing opportunities to live their lives in a positive fashion. If your doctor/PT/any other health professional has instructed you not to do something, listen to them over me! Think positively, take the correct steps & you’ll get there ever so soon! xx
RELATED POSTS: 
- Adventuring with Chronic Pain
- Fact of Life: When Fishing Such Faces Should Always be Made
- The Dreaded Cabin Fever…
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Cross Another Off the Bucket List :)

Yay! First hike since being diagnosed with CRPS/RSD!

I can’t believe I was in the hospital so recently!

It just goes to show that anything is possible :) Trust me, if I can push through it (and to be honest… this coming from a girl whose current major passions are: bed, HGTV, and the Golden Girls) you sure can too!

Did parts of it hurt a little? Heck yea! But that’s what life is all about. Even those so called ‘normal people’ (ha!) face challenges on a daily basis. So get out there on a good day* and show yourself what you can do! I’ll bet you’ll be pleasantly surprised. 

Lots more pictures to come of gorgeous Yosemite.

Lots of love & Be Well! - Danielle xx

*I am in no way, shape or form a doctor or health professional. I am simply someone who enjoys to see people like myself grabbing opportunities to live their lives in a positive fashion. If your doctor/PT/any other health professional has instructed you not to do something, listen to them over me! Think positively, take the correct steps & you’ll get there ever so soon! xx


RELATED POSTS: 

- Adventuring with Chronic Pain

- Fact of Life: When Fishing Such Faces Should Always be Made

- The Dreaded Cabin Fever…

19

Mar

Physical Therapy made much more tolerable with this view…

Physical Therapy made much more tolerable with this view…

15

Mar

This Little Piggy Went WOOHOOO WHOOP WHOOOP WHEEEE!!!

I had quite the moment yesterday. 

I’m sure you’ll remember - but please feel free to click here for a refresher on the details of my story - the original injury kickstarting this whole CRPS/RSD hoopla involved me, but mainly my tiny left foot being crushed under the wreckage of a flipped Yamaha Rhino. As you know (but again - details in the link above), in order to avoid what was originally thought to be a case of amputation, the paramedic removed the muscles from the top of my foot, freeing me from the damage - crushed/mangled bits and all. 

My accident happened on the 28th of March, 2010 meaning that it had been almost exactly 2 years since moving my toe. I say toe and not toes because in this case, it is specifically the middle one that gives me the most trouble and was most badly damaged.

Having spent hours upon hours at physical therapy trying to relearn how to use it with what little is left in there, it’s been at (many, many) times beyond frustrating. I’ve wiggled it and wiggled it, only to have it feel like a hardened log. Attempted to scrunch towels to no avail. And, don’t even get me started on trying to tip-toe. 

But, yesterday… I was mindlessly wiggling yet again when all of a sudden…

CLICK! Wiggle! CLICK!

My toe moved. It unlocked. It took a breathe. My entire foot shifted and made some space for itself. For the first time in 2 years, my foot felt open. It felt free. 

It’s quite the feeling :)

I don’t know whether it was timing. Or persistence. Or simply what was meant to be. But I do know that it was worth the wait and it was most definitely worth not giving up on. 

Anyway, hope you enjoy my ‘moment’ as much as I did!

Lots of love, Danielle xx

27

Feb

Tomorrow! Tomorrow!

Hey, you guys? 

My demo spinal cord stimulator goes in tomorrow. I know you probably had it marked in your calendar, but I just thought I’d remind you. 

I could not possibly be more excited! It’s like… you know when you were little, and you would think of something lovely (and probably semi-annual or sugar-filled) and subsequently get so excited that your heart would become so overwhelmed it felt ready to pop? And then as a reflex your body would do a little wriggle or squirm because there’d be so much adrenaline in there floating around just from that one thought? 

Yes? No? Maybe? Weird? 

Anyway, I do that. And it’s happening every time I think of tomorrow. I am so hopeful, excited, and ready for this procedure!

Tomorrow… Eeee! xx

RELATED POSTS:

- Touchdown in Chicago for the SCS Trial!


19

Feb

This week has sort of felt like a tripping-with-my-thumbs-up sort of week.
But as always… things are gonna be a-OK. xx

This week has sort of felt like a tripping-with-my-thumbs-up sort of week.

But as always… things are gonna be a-OK. xx

10

Feb

Project 3x5 Guest Blogs over at RSDThings...

Have you heard of RSD Things? It’s a good one! Helpful and insightful should you be looking for inside information on Complex Regional Pain Syndrome or Reflex Sympathetic Dystrophy (CRPS/RSD), while also darkly humorous (don’t worry all you non-sufferers, we’re in on the joke!) believing that the best thing to do when you’re in pain is laugh.

If you suffer with CRPS/RSD you will most definitely be able to identify. If you don’t - consider the blog a rare peek into the mind of a sufferer. For example: 

submitted by ohsweetirony

submitted by ohsweetirony

Both RSDThings and both funny (to us, anyway) because they’re true. 

Anyway, I am pleased as punch to be able to guide you on over to this clever little site where you can now not only find more of these fantastically relatable sayings (& more)… but where you can also read ‘A Year’ - a recount of my emotional roller coaster following the first year of my CRPS/RSD diagnosis. I hope you enjoy. :)

rsdthings:

It is absolutely incredible, awe-inspiring, jaw-dropping (ok, ok, enough already… I’m sure you get it) how much of a difference just ONE year can make. 

As many of you know or will soon come to learn, in March of 2010, I was involved in a bad accident which left my left leg badly crushed. 

We’re talking all bones broken and sticking out, skin ripped off, joints smashed and spun around, stuck on the border of Saudi Arabia with no pain-killers for over 2 hours - crushed…

27

Jan

Oh, Complex Regional Pain Syndrome!
You know that once you’ve taken a shot of the Trini villagers’ ‘Snake Juice’, all remedies have been tried. 
Bottoms up ;) x

Oh, Complex Regional Pain Syndrome!

You know that once you’ve taken a shot of the Trini villagers’ ‘Snake Juice’, all remedies have been tried. 

Bottoms up ;) x

25

Jan

Pain and Broken Boards…

Josh has broken his board. 

It’s a bummer when it happens, but I suppose can be taken as a fantastic and inspirational lesson due to his intensity and talent surfing. He works so hard at it, rain or shine. He’s been injured badly but never quit. And he’s fought a late start in the game to nevertheless become one of the top surfers Trinidad has to offer. 

Oh I know, I know… you think I sound like a complete and utter nauseating goon. Blegh! But I promise, you’ll see it, too! Just wait until I post a video. 

Anyway, the board is broken. But, hopefully without sounding too cheesy, it stands as a monument to his spirit. Something that I think we can all take from and relate to.

In fact, as I type this, I am looking down at my own flaring-up, very colourful, and scarred up foot with a big ol’ smile because I am lucky enough to walk, or be wheeled, around with a very personal monument to my spirit at all times too. My very own ‘broken board’, shall we say… 

Complex Regional Pain Syndrome (CRPS/RSD) is a pain in the ass, no doubt! But by carrying my own ‘broken board’ through my wounds, I carry my ‘monument’ or ‘trophy’, personally. 

And how comforting is it to constantly carry an award(s) reminding you of how far you’ve come and how strong you are? I find that for me at least, having that trophy on me at all times is a constant reminder of how amazingly far I’ve come through my own passion to get better, my intensity, and my strength. That way, it’s easy to step into the future.

Look down at your wounds - invisible or not - and smile. Check on your broken boards and see that you’ve won a few awards already. 

“You’re braver than you believe, and stronger than you seem, and smarter than you think.” - A.A. Milne, “Winnie-the-Pooh”