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19

Oct

(NO) Ice Ice Baby…

YES!

I could not agree more with the below incredibly wise adv’ice’ (get it?!) about CRPS/RSD & ICE from the website rsdhope.org.…

Unless you’re wanting pain that feels like someone has ferociously stabbed you with a razor sharp blade prior to ripping it haphazardly through your affected limb with great might and very little care (obviously) to your feelings…

DON’T APPLY ICE IF YOU HAVE COMPLEX REGIONAL PAIN SYNDROME (CRPS/RSD)!!!

Just, no. xx

"http://www.rsdhope.org/ice-and-crps.html"

16

Jul

Times are bad. Children no longer obey their parents and everyone is writing a book.” / Cicero, circa 43 BC

13

Jul

My dear friend, Miss Meghan McCain is co-hosting “The View” tomorrow morning. Tune in and watch! I’m so, so proud of her!
Not to mention, she supports our CRPS/RSD cause by rocking an orange TheProject3x5 awareness bracelet whenever she can. Now is she a wonderful friend or is she a wonderful friend? xx 

My dear friend, Miss Meghan McCain is co-hosting “The View” tomorrow morning. Tune in and watch! I’m so, so proud of her!

Not to mention, she supports our CRPS/RSD cause by rocking an orange TheProject3x5 awareness bracelet whenever she can. Now is she a wonderful friend or is she a wonderful friend? xx 

19

May

Let’s think about the term “INVISIBLE ILLNESS”.
Not just a distant concept, it has the potential - though I pray it never once touches you - to affect any and all of us. To change a life in less than a split-second. To forever alter and shift your perspective in both positive and negative ways. And that’s whether you’re the person affected, a caregiver, or simply a friend and support system.
Look around! Open your eyes! Are you perhaps “looking but not seeing” what a loved one might need?
Attempt the practice of being kind - ALWAYS! For we never know what others are going through. From severe Chronic Pain to Post Traumatic Stress Disorder (PTSD), or even depression from lingering grief for the death of a loved one, young or old.
Invisible Illnesses and difficulties are faced everyday by those we’d least expect.  
Life is hard! Why make it harder on the ones that we so adore? Life is about stretching ourselves to be better people. Let’s start with this lesson! :)
Happy Monday, everyone! Big love - Danni
Oooh! And just one more thing..! I’m so excited to be posting regularly to both my Pinterest and Instagram accounts! Let’s connect! Both are SUPER active with lots of fun stuff. For example, on my Pinterest, find CRPS/RSD inspired beauty tips as well as easy crafts to occupy your mind and time during dreaded pain flares! And on Instagram, follow along as I attempt to live life to the fullest despite my very own Invisible Illness. 
So, come and join me! My account name on both sites is (of course!) ‘theproject3x5’. Or, to make things super easy, you can go ahead and just click on the any of the links in this blog post. Easy-Peasy, right? No excuses ;) I’ll see you there! xx

Let’s think about the term “INVISIBLE ILLNESS”.

Not just a distant concept, it has the potential - though I pray it never once touches you - to affect any and all of us. To change a life in less than a split-second. To forever alter and shift your perspective in both positive and negative ways. And that’s whether you’re the person affected, a caregiver, or simply a friend and support system.

Look around! Open your eyes! Are you perhaps “looking but not seeing” what a loved one might need?

Attempt the practice of being kind - ALWAYS! For we never know what others are going through. From severe Chronic Pain to Post Traumatic Stress Disorder (PTSD), or even depression from lingering grief for the death of a loved one, young or old.

Invisible Illnesses and difficulties are faced everyday by those we’d least expect.  

Life is hard! Why make it harder on the ones that we so adore? Life is about stretching ourselves to be better people. Let’s start with this lesson! :)

Happy Monday, everyone! Big love - Danni

Oooh! And just one more thing..! I’m so excited to be posting regularly to both my Pinterest and Instagram accounts! Let’s connect! Both are SUPER active with lots of fun stuff. For example, on my Pinterest, find CRPS/RSD inspired beauty tips as well as easy crafts to occupy your mind and time during dreaded pain flares! And on Instagram, follow along as I attempt to live life to the fullest despite my very own Invisible Illness. 

So, come and join me! My account name on both sites is (of course!) ‘theproject3x5’. Or, to make things super easy, you can go ahead and just click on the any of the links in this blog post. Easy-Peasy, right? No excuses ;) I’ll see you there! xx

13

May

In dealing with those who are undergoing great suffering, if you feel “burnout” setting in, if you feel demoralized and exhausted, it is best, for the sake of everyone, to withdraw and restore yourself. The point is to have a long-term perspective. / Dalai Lama

17

Apr

Actually, it’s better than ok! Throw out your 5 year plans & go with the flow ;) xx #makeplansandgodlaughs #positivefromnegatives

Actually, it’s better than ok! Throw out your 5 year plans & go with the flow ;) xx #makeplansandgodlaughs #positivefromnegatives

18

Feb

#WinBSCHOOL!!!!

Hi, you!

How’s it going? Are you having a good week?

Have you ever dreamt big? Really big? In fact, what feels like maybe almost sometimes a little bit scary big - but scary in a good way!!! In a way to where you get soft, fluttery butterflies in your tummy - not the steel tipped ones. Well, that’s where I am right now, and I couldn’t be more excited about it! To me, there’s no better feeling than being pushed out of your comfort zone - especially for a good cause! And especially when you feel so proud of the end result!

See, I’m up for a scholarship to the wonderful Marie Forleo’s B-School! The application was a video via YouTube (see that video above? that’s it right there!) and the win would be a way for me to really learn how to skyrocket TheProject3x5 and CRPS/RSD advocacy to the next level.

To be a little more specific, based on my own experience with Chronic Pain and Chronic Illness - through my disease CRPS - I want to bridge the gap & make it easier for other patients from the terrifying starting point of initial diagnosis right through to figuring out treatments and finding support groups. Stress only amplifies illness! So, let’s get rid of that pesky little problem! I’d be sure to instead work TheProject3x5 around mindfulness and meditation. Again, using my own experiences to make sure it’s a realistic endeavor.

I get excited just thinking about it all!

But, like I said… first up, I need to win the scholarship! And here’s where you come in…

How?! Well…

VIEW MY SHORT VIDEO & SPREAD THE WORD!
- The video above explains everything! Watch it on as many devices as you have, because the greater the views I get, the greater a shot I have.
- Then click here, to like the video on YouTube - again the more likes I get, the greater a shot I have!
- It’d mean the world to me if you were to stay on the YouTube page & make a positive comment about the video - this step is super important* because again - you got it! The more positive comments, the greater the chances are that I’ll be awarded the scholarship.

People get thousands of views! So let’s show them what Trinis, TheProject3x5, and The Power of Pain Communities can do here! :)

And did I mention that sharing is caring?

LET EVERYONE YOU KNOW SEE THE VIDEO!!!
Either via Facebook, Tumblr, or Twitter, perhaps even Pinterest! Any other social media platform should be just fine, I’m sure!

Just please make sure that however you decide to share, you also put:

1) the hashtag - #winBSCHOOL on it
2) my name (Danielle Alexis Cosgrove)
4) the original video YouTube link - http://youtu.be/HdMCg7y9Hk0
3) and then this link as well, to promote B-School for Marie :) - http://joinbschool.com/

Thanks a million!!! You’re the best and I hope you have a fantastic week! xx

11

Feb

Laughter is the Best Medicine!

Remember the good old days when Thursday night was for watching “30 Rock" and Liz Lemon was for making you feel that much more secure in your own skin thanks to her never-ending bizarro and crazy-hilarious misgivings? Oh, history!

Whether you were a great fan of the show, caught it once or twice, or (quelle horreur!) have still never seen it; if you suffer from Chronic Pain there’s no denying you’ll be able to relate on some level to Phoebe (Emily Mortimer’s character) and her chorus of “Oww!

I live with the rare, and for the most part invisible, Chronic Pain condition Complex Regional Pain Syndrome (CRPS/RSD) and found myself in a fit of giggles thinking back to the many times strangers have stared at me - someone seemingly in good health - while I almost subconsciously “Oww!” my way through a task.

After all, if you can’t beat it - LAUGH!!! :)

Hope you’re well! Have a wonderful day. - Danielle xx

Ps: I’ve been undergoing pretty intense inpatient ketamine infusions so haven’t been able to write properly for ages. I miss you guys! I’ve been doing my best to update my Twitter feed, Instagram, and Pinterest accounts - so be sure you’re following me there so we can keep in touch. If you’d like more contact information, click the “Contact" tab to the left!

22

Jan

I know you all lead very busy lives, but PLEASE take a second to watch this video so that we can raise awareness for Complex Regional Pain Syndrome (CRPS/RSD) and help this poor 11-year-old go back to living a busy life too.

No one her age should have to suffer the enormous amount of pain caused by this disease. So, if this video touches you in any way… help other young CRPS sufferers tomorrow (Friday, 24th) by wearing “crazy socks” (yup, it’s a thing!) It doesn’t matter how long you wear them for - just take a picture, post it to the following Facebook page, and enjoy the feeling of having done your good deed for the day!

https://www.facebook.com/CrazySockDay

19

Sep

It’s a Winnie Quote and The Giving Keys Mash-Up Sort of Day… xx
Oh, weather!!! You’re now coursing/cursing through my veins. And you’re bloody steamy in the worst of ways. Hot and humid. Stop burning me! All of this really isn’t very becoming.
I’m also convinced that somehow mosquitoes - the big, Southern, buzzy, beyond LOUD kind (I did say they were Southern, did I not..? hehe) - have mined their way in to my Vascular and Nervous System. I envision them sloppy drunk having chugged my blood and gnawed on my nerves turkey-leg-style to a sickening fill. None are older than high-school age. Unable to handle their drink nor able to contain their immaturity and excitement at such unbridled excess, they’re having a field day! Assholes. I’m definitely still talking about the fake mosquitoes I imagine in my veins by the way…
And so the monsters, massive in the scheme of cells, take to setting off fireworks that ZING! through my bloodstream, each spark setting a new fire that my body just has no energy to deal with anymore. The mosquitoes buy the fireworks from their maniacal almost evil genius red-ant friends. Sorry! Did I forgot to mention that they hang around too? Oh, yes. But not really. It just feels like it. A lot these days. And so, I’d really like this weather front to move out now. Until then… 
It’s a Winnie quote and @thegivingkeys mash-up sort of day. xx
#strength #braverthanibelieve 

It’s a Winnie Quote and The Giving Keys Mash-Up Sort of Day… xx

Oh, weather!!! You’re now coursing/cursing through my veins. And you’re bloody steamy in the worst of ways. Hot and humid. Stop burning me! All of this really isn’t very becoming.

I’m also convinced that somehow mosquitoes - the big, Southern, buzzy, beyond LOUD kind (I did say they were Southern, did I not..? hehe) - have mined their way in to my Vascular and Nervous System. I envision them sloppy drunk having chugged my blood and gnawed on my nerves turkey-leg-style to a sickening fill. None are older than high-school age. Unable to handle their drink nor able to contain their immaturity and excitement at such unbridled excess, they’re having a field day! Assholes. I’m definitely still talking about the fake mosquitoes I imagine in my veins by the way…

And so the monsters, massive in the scheme of cells, take to setting off fireworks that ZING! through my bloodstream, each spark setting a new fire that my body just has no energy to deal with anymore. The mosquitoes buy the fireworks from their maniacal almost evil genius red-ant friends. Sorry! Did I forgot to mention that they hang around too? Oh, yes. But not really. It just feels like it. A lot these days. And so, I’d really like this weather front to move out now. Until then… 

It’s a Winnie quote and @thegivingkeys mash-up sort of day. xx

#strength #braverthanibelieve