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22

Jan

I know you all lead very busy lives, but PLEASE take a second to watch this video so that we can raise awareness for Complex Regional Pain Syndrome (CRPS/RSD) and help this poor 11-year-old go back to living a busy life too.

No one her age should have to suffer the enormous amount of pain caused by this disease. So, if this video touches you in any way… help other young CRPS sufferers tomorrow (Friday, 24th) by wearing “crazy socks” (yup, it’s a thing!) It doesn’t matter how long you wear them for - just take a picture, post it to the following Facebook page, and enjoy the feeling of having done your good deed for the day!

https://www.facebook.com/CrazySockDay

04

Jan

Still in need of a 2014 New Year’s Resolution?
Pledge to spread some much-needed joy by handing out as many free hugs (even if they’re light or air ones due to Chronic Pain!) as you can all year long.
You never know whose day you’re about to make! ✌ xx 

Still in need of a 2014 New Year’s Resolution?

Pledge to spread some much-needed joy by handing out as many free hugs (even if they’re light or air ones due to Chronic Pain!) as you can all year long.

You never know whose day you’re about to make! ✌ xx 

16

Oct

Forwards Ever. xx 

Forwards Ever. xx 

19

Sep

It’s a Winnie Quote and The Giving Keys Mash-Up Sort of Day… xx
Oh, weather!!! You’re now coursing/cursing through my veins. And you’re bloody steamy in the worst of ways. Hot and humid. Stop burning me! All of this really isn’t very becoming.
I’m also convinced that somehow mosquitoes - the big, Southern, buzzy, beyond LOUD kind (I did say they were Southern, did I not..? hehe) - have mined their way in to my Vascular and Nervous System. I envision them sloppy drunk having chugged my blood and gnawed on my nerves turkey-leg-style to a sickening fill. None are older than high-school age. Unable to handle their drink nor able to contain their immaturity and excitement at such unbridled excess, they’re having a field day! Assholes. I’m definitely still talking about the fake mosquitoes I imagine in my veins by the way…
And so the monsters, massive in the scheme of cells, take to setting off fireworks that ZING! through my bloodstream, each spark setting a new fire that my body just has no energy to deal with anymore. The mosquitoes buy the fireworks from their maniacal almost evil genius red-ant friends. Sorry! Did I forgot to mention that they hang around too? Oh, yes. But not really. It just feels like it. A lot these days. And so, I’d really like this weather front to move out now. Until then… 
It’s a Winnie quote and @thegivingkeys mash-up sort of day. xx
#strength #braverthanibelieve 

It’s a Winnie Quote and The Giving Keys Mash-Up Sort of Day… xx

Oh, weather!!! You’re now coursing/cursing through my veins. And you’re bloody steamy in the worst of ways. Hot and humid. Stop burning me! All of this really isn’t very becoming.

I’m also convinced that somehow mosquitoes - the big, Southern, buzzy, beyond LOUD kind (I did say they were Southern, did I not..? hehe) - have mined their way in to my Vascular and Nervous System. I envision them sloppy drunk having chugged my blood and gnawed on my nerves turkey-leg-style to a sickening fill. None are older than high-school age. Unable to handle their drink nor able to contain their immaturity and excitement at such unbridled excess, they’re having a field day! Assholes. I’m definitely still talking about the fake mosquitoes I imagine in my veins by the way…

And so the monsters, massive in the scheme of cells, take to setting off fireworks that ZING! through my bloodstream, each spark setting a new fire that my body just has no energy to deal with anymore. The mosquitoes buy the fireworks from their maniacal almost evil genius red-ant friends. Sorry! Did I forgot to mention that they hang around too? Oh, yes. But not really. It just feels like it. A lot these days. And so, I’d really like this weather front to move out now. Until then… 

It’s a Winnie quote and @thegivingkeys mash-up sort of day. xx

#strength #braverthanibelieve 

11

Sep

It’s Invisible Illness Week!!! xx

"It’s the moooost wonderful time of the year… " - umm, awareness-wise that is!

Why? Well, between this month being Pain Awareness Month, this week being Invisible Illness Week, and November or NERVEmber just around the corner… there’s so much going on! 

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I’m currently working on an amazing list of activities for you to join in on the advocacy and fun, but until then, why not start off at www.invisibleillnessweek.com

There, you’ll not only find incredible blogs you might just relate to in a huge way - you can submit your own, too! But, you’ll also find cool downloads, gifts(!), podcasts, webinars, creative campaigns, helpful hints, and best of all scheduled chats where you can meet friends. 

Guys, I haven’t even scratched the surface. This website goes into overdrive for 1 week a year, so let’s make the best of it to get the word out!!! 

We may, “Look just fine! Great in fact!” but we’re still ill. It’s a double edged sword to look well but not feel it, and it’s TOUGH to live this way. It’s constant limbo, and on the one hand, yes… looking well is a lovely bonus. But on the other, our illnesses are constantly overlooked and often even taken as a joke.

So, this year help get the word out that perhaps we mustn’t only judge books by their covers. We also mustn’t be too quick to judge our fellow human beings. xx

Lots of love to you all! 

Be Well - Danni xx

PS: Find Invisible Illness Week on Twitter @invisibleillwk and use the hashtag #iiwk13 to get in on the action :) 

05

Sep

Yay! My feet are tolerating “shoelace shoes” today :) I proudly choose to wear orange in honor of September being Pain Awareness Month! Click here to find out more from the Power of Pain Foundation’s Facebook Page.

Yay! My feet are tolerating “shoelace shoes” today :) I proudly choose to wear orange in honor of September being Pain Awareness Month! Click here to find out more from the Power of Pain Foundation’s Facebook Page.

02

Sep

I get a lot of questions on the name of my blog seeing as it seemingly has nothing to do with pain or illness. Have you ever wondered where ‘TheProject3x5’ came from or what on Earth it must mean? Let me share! :)

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When the doctors first shared with me my diagnosis of Complex Regional Pain Syndrome (CRPS - also known as Reflex Sympathetic Dystrophy or RSD), I was totally clueless as to what I was dealing with. How could it be that something I had never once heard of was suddenly ravaging my helpless little body, causing such immense, unspeakable Chronic Neuropathic Pain?

As we do these days, I turned to the Internet praying that I would find solace through the almighty Google! I became an information warrior, yet quickly found my cyber-self bogged down by mainly negative, often misinformed personal sites, blogs, and forums. Chronic Pain is no easy feat, and as I’ve said before, I can understand and empathize with the despair and desperation that these patients must have been facing. After all, even the best of us have our bad days.

It was there and then however, that I decided to line my path with positivity and hope. If that wouldn’t do it, I decided faith would be my constant companion, walking beside me every step of the way. As a cause of CRPS/RSD, I knew that Chronic Pain and Illness might affect my life, but I would in no way let them be or take over my life.

Blogging my journey from that moment on was a no-brainer! Why? Not only would it keep me accountable, I also thought that perhaps I would find others out there who wanted to live in hope similarly to me. How has that worked out? To that end I’ve come into contact with so many more people than I ever thought I would! In fact, some don’t necessarily suffer Chronic Pain but instead are just looking to live positively - it’s been great fun!

In addition I hoped very much that I might raise the staggeringly low awareness level for CRPS/RSD, and eventually other forms of Chronic Neuropathic Pain. On that note, I’m so proud to say that, I have just become the Texan Ambassador for The Power of Pain Foundation, a national organization with international reach that indeed raises a great amount of awareness and funds for many different illnesses (from CRPS/RSD, HIV, MS to Post-Cancer Pain and many, many more) with Chronic Neuropathic Pain.

Finally, in the back of my mind I perhaps thought that by sharing my life, it might motivate a few others to truly live through their pain, too. Little did I know that this would end up to work the other way! I have been both incredibly motivated and inspired through the constant comments, emails, and love I’ve been given instead! It’s been wonderful.

BUT STILL…

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When it came time to name my new blog, I went back and forth! Should it be something to do with CRPS/RSD? But then what if I wanted it to grow? Ok, then, something to do with Chronic Illness or Chronic Pain. Wait! Should I incorporate my name? What a task!

So, I simplified…

Going back to my original thoughts on how I wanted to walk this new path and on what I wanted out of my blog, the name, ‘TheProject3x5’, came to me in a second. I quickly scratched any previous idea I had had of using illness or pain in the title. Those things were never to define me. Instead, I wanted something positive. Something to keep me motivated and on both my virtual and real-life toes.

I thought of the fact that I would now be sharing my life, to achieve certain goals, through a series of captured moments, or snapshots - the size of which are ‘3x5’.

And so there you have it :) TheProject3x5

I hope you all are well and enjoying your long weekend! It’s so great to be back blogging with you. I’d missed it very much, but please don’t forget you can always find me Tweeting away @Theproject3x5 and on Instagram as theproject3x5.

Be Well!,

Danielle xx

Ps: Does the frame and picture motif make more sense now? 

30

Aug

3 Years Later: My Appointment at Dr. Schwartzman’s Practice Has Arrived!

Touchdown in Philly!!!

When 1st diagnosed with CRPS/RSD (over 3 years ago), I immediately called to make an appointment with the famed Neurologist Dr. Schwartzman at Drexel University in Philadelphia. My appointment date was set for last week - 3 YEARS later!

As I’ve patiently waited, my CRPS/RSD has spread from my left foot to my full body. I have also been diagnosed with ‘POTS’ (or Postural orthostatic tachycardia syndrome). I’ve undergone Ketamine Infusions, and I have a Spinal Cord Stimulator.

But you knew that as you read this blog, right… ;)

My appointment date at Drexel has FINALLY arrived! It should be noted that Dr. Schwartzman retired just a few weeks ago (oh, the irony!!!) however I’m sure that with as much as he has riding on his name, he wouldn’t leave his practice to someone he didn’t feel was incredibly capable - perhaps even better than him. This Vlog chronicles my feelings on the upcoming appointment upon landing in Philly… 

30

Aug

I agree, Max. Time for a break. x
RELATED POSTS:
- Hey! Did You Get Me A Christmas Present? 
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- Have You Met My Babies? 
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I agree, Max. Time for a break. x

RELATED POSTS:

Hey! Did You Get Me A Christmas Present? 

Dr. Bella to the Rescue!

- Have You Met My Babies?