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30

Aug

I agree, Max. Time for a break. x RELATED POSTS: - Hey! Did You Get Me A Christmas Present?  - Dr. Bella to the Rescue! - Have You Met My Babies?  ]]>

I agree, Max. Time for a break. x

RELATED POSTS:

- Hey! Did You Get Me A Christmas Present? 

- Dr. Bella to the Rescue!

- Have You Met My Babies? 

8 months ago Short URL 5 notes

CRPS/RSD/complex regional pain syndrome/reflex sympathetic dystrophy/chronic pain/chronic illness/chronic disease/Chronic Sickness/chronic nerve pain/nerve pain/nerve disease/nerve disorder/neurology/neurological disease/neuropathy/neurological pain/invisible illness/invisible disease/physical therapy/Physiotherapy/PT/Fibro/Endo/JRA/Relax/puppy love/dogs and health/Health/medical dogs/Dogs/

26

Feb

Gah! How on earth does one pack economically for surgery in cold Chicago and recovery in warm Trinidad? It won’t fit! I can’t get it to all fit! x

Gah! How on earth does one pack economically for surgery in cold Chicago and recovery in warm Trinidad? It won’t fit! I can’t get it to all fit! x

1 year ago Short URL 4 notes

CRPS/Chicago/RSD/T&T/Trinidad/Trinidad and Tobago/chronic disease/chronic illness/chronic neurological pain/chronic pain/chronic sickness/complex regional pain syndrome/dr Lubenow rush Chicago/dr Timothy Lubenow/health/medical/neurological pain/neurology/neuropathy/reflex sympathetic dystrophy/rush university hospital/travel/invisible illness/

12

Feb

Sale! Sale! Sale! Sale!

Chronic Pain Tracker & Pain Management iPhone App Without a doubt, my 2 least favorite words at the doctor’s office are “physical therapy”. But since my diagnosis of CRPS/RSD, I think the words “pain diary” are running a close second.  A pain diary?! SUCH a chore! The pain is constantly changing. Am I supposed to write this thing all day long? Not to mention the fact that there are loads of variables that may be causing this thing. Am I supposed to list all of those?! What if my pain is in my hand? How will I manage to hold the pen? And where to even start describing how it looks?! Can I not just take a photo and send it to the doctor? Ugh.  Well, not to worry anymore! Some clever little person has come up with the best thing since pie (I have never really been a fan of bread, sliced or other) and created an app to solve all of our problems. A description of the app in their own words: My Pain Diary: Chronic Pain Management was developed to eliminate some of the overhead in keeping a pain diary and communicating the information to health care professionals. MPD is useful for a variety of chronic conditions. The app is easily customizable to track anything from migraines to depression to CRPS/RSD to fibromyalgia. Use it daily to find patterns, triggers and stressors. Or use it after a surgery to keep tabs on your recovery. How fantastic does that sound? I bought it about a week ago ($2.99 from the App Store) and I’m really pleased. It’s easy to keep track of your good days and your bad days through graphs - and then print, email, or turn them into PDFs to share with your doctor for further analysis.  Moreover, MPD picks up on your current location to grab the local weather and save it with your entries. If you’ve always suspected that weather plays a part in your pain or mood, now you can pick up on patterns and see for sure! So simple.   MPD also allows you to attach up to 3 photos per entry. This is so perfect for those of us with CRPS/RSD! And for anyone else with a condition needing to keep track of swelling and color changes. How amazing is this app? I could go on and on about the other features (customizable, color-coded, etc.) but the app is so simple, it’ll take you 2 seconds to figure everything out yourself. Only negative is that so far it’s only available for the iPhone, but you never know! Maybe soon…  Should you want more information, you can find it here: ChronicPainApp.com  *Not sponsored. I just really like it. x (Images via ChronicPainApp) - RELATED LINKS: - All About Awareness: Customized RSD Gifts/Gear  - Pamper Yourself: Stuck-in-Bed-Flare-Up Edition - Because There’s 6 More Weeks of Winter…

You heard about the fantastic MyPainDiary App for the iPhone right here just a few days ago, and now its brilliance has been combined with the best word in the English language… 

“SALE!”

Sure, it’s only a dollar off (down to $1.99 from $2.99) but consider it a medical expense and hey - it all adds up, right? 

Available at the Apple App Store - Go! Right now! Go! 

* I have no idea no affiliation to MPD, I’m just a fan. Yup! It’s that good…

1 year ago Short URL 6 notes

Arthritis/CRPS/CRPS/RSD/Chrons/Complex regional pain syndrome/Endometriosis/Neurological Pain/Neurology/Phantom Limb Syndrome/Phantom Pain/RA/RSD/Rheumatoid Arthritis/Spoonies/chronic disease/chronic illness/chronic pain/disability/disabled/fibromyalgia/reflex sympathetic dystrophy/nerves/nerve pain/neurology/neurological pain/health apps/health app/medical apps/medical app/chronic pain management/

Running is a privilege.

1 year ago Short URL 9 notes

CRPS/CRPS/RSD/Complex regional pain syndrome/RSD/Yamaha/Yamaha Rhino/Yamaha Rhino Accident/accident/chronic disease/chronic illness/chronic pain/disability/disabled/neurology/pain/reflex sympathetic dystrophy/run/running/spoonies/nerve pain/neurological pain/running is a privilege/quote/Inspirational Quote/motivation/

08

Feb

Sacrifices… Less than 2 weeks now until Carnival in Trinidad & Tobago - That would be the motherland for all you new followers. I know, I know… woe is me. ;)  Carnival and the bacchanal surrounding it make up at least 75% of the identity of a Trini, so as you can imagine it is absolutely KILLING me that my surgery to implant the Spinal Cord Stimulator is scheduled in Chicago for the exact same time.  Snow and hospital-jello? Or Sun and jello-rumshots? Hmm? Grrr.  But in all seriousness… I’m so excited for this SCS to be implanted! The thought of my life possibly filled with minimal pain leaves me absolutely speechless. And for that… i’d sacrifice anything. Carnival and all. I can’t wait!!! *Ps - That blonde stunner on the left is the baby of the family. Gorgeous, no? And she has the personality of an angel and brains to boot. I’m blessed with quite the support system and I’m so proud to be able to share them with y’all. x RELATED ARTICLES: - Whining for some Wine - Josh Meets Cali - Light at the End of the Tunnel

Sacrifices…

Less than 2 weeks now until Carnival in Trinidad & Tobago - That would be the motherland for all you new followers. I know, I know… woe is me. ;) 

Carnival and the bacchanal surrounding it make up at least 75% of the identity of a Trini, so as you can imagine it is absolutely KILLING me that my surgery to implant the Spinal Cord Stimulator is scheduled in Chicago for the exact same time. 

Snow and hospital-jello? Or Sun and jello-rumshots? Hmm? Grrr. 

But in all seriousness… I’m so excited for this SCS to be implanted! The thought of my life possibly filled with minimal pain leaves me absolutely speechless. And for that… i’d sacrifice anything. Carnival and all. I can’t wait!!!

*Ps - That blonde stunner on the left is the baby of the family. Gorgeous, no? And she has the personality of an angel and brains to boot. I’m blessed with quite the support system and I’m so proud to be able to share them with y’all. x

RELATED ARTICLES:

- Whining for some Wine

- Josh Meets Cali

- Light at the End of the Tunnel

1 year ago Short URL 7 notes

CRPS/RSD/Carnival/Carnival Trinidad/Chicago/Harts/Harts Mas Camp/Harts Trinidad/Neurology/Photography/Port of Spain/SCS/Trinidad/chronic illness/chronic pain/complex regional pain syndrome/neurological pain/pain/personal/personal photography/personal picture/personal pictures/reflex sympathetic dystrophy/spinal cord stimulator/trinidad and tobago/sunshine/caribbean/West Indies/Tropical/West Indian/Trini/

07

Feb

The War Over Prescription Painkillers

An incredibly enlightening article on “The War Over Prescription Painkillers”. It’s a topic our household has debated amongst ourselves many times both pre and post CRPS/RSD diagnosis, and interestingly enough most opinions on the issue have never wavered. 

It’s a long article so I’ll stick with this reblogged summary. Don’t hesitate to click on over to the Huffington Post if you’d like to read the whole thing. 

Read More

1 year ago Short URL 4 notes

CRPS/RSD/chronic disease/chronic illness/chronic pain/complex regional pain syndrome/crps/health/medical/pain/reflex sympathetic dystrophy/rsd/prescription painkillers/huffington post/sleep disorders/neurology/neurological pain/invisible illness/frustration/